Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Celebrating YOU Our Myositis Heroes
Join us for a celebration of TMA’s 30th Anniversary and our 4-day in-person International Annual Patient Conference on September 7–10 at the Sheraton San Diego Hotel and Marina.
Registration is Open!Click here to register!
On Saturday, September 9, TMA hosts our annual Heroes in the Fight Awards Celebration, honoring the dedicated researchers and clinicians working hard to make progress in the care and treatment of myositis diseases, and celebrating the extraordinary resilience and strength of our patient community. This special dinner and awards ceremony (separate tickets required) takes place in conjunction with the 2023 International Annual Patient Conference in San Diego.Learn more!
It’s not too late to be part of TMA’s incredible 2023 Virtual Summit! Registered participants can access all the presentations on the virtual platform through June 22. Register now and take advantage of this opportunity to learn from leading experts in myositis research and care, and gain valuable insights to help you on your myositis journey.Learn more!
TMA’s Flying Solo Affinity Group Meeting Wednesday, October 4, 2023 | 8:01 pm – 9:30 pm
TMA Myositis Family Podcast Guest Interest and Information Session Friday, October 6, 2023 | 1:00 pm – 2:00 pm
Are you curious about being a guest on the TMA podcast about living with myositis? We have a new host…
TMA East Michigan Myositis Support Group Meeting Saturday, October 7, 2023 | 10:30 am – 12:30 pm
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
2022 International Annual Patient Conference: A Focus on the Future
TMA’s 2022 Annual Patient conference featured dozens of presentations on a wide range of topics related to understanding and living with myositis. If you weren’t able to attend—or you want to be reminded about the valuable information you gained—check out the videos from some of those presentations here.
TMA's Affinity Groups
Our increased virtual environment has allowed for connectivity that surpasses geographic location. In addition to our traditional KIT support groups, TMA is supporting meeting circles with outreach efforts targeted toward supporting and extending our organization’s reach into new communities.
Myositis Awareness Month
May is National Myositis Awareness Month! Celebrate with us by learning how to educate your community about myositis. With our 2023 theme, “Beyond Limits,” we are continuing to support those who live with myositis, their care partners, and the health professionals who treat them.
Peter Frampton leads the fight against myositis from front stageJuly 25, 2023
When an individual goes above and beyond, representing, raising awareness, and contributing financially to the work of The Myositis Association…
How I moved from paralysis to hiking the AlpsJune 5, 2023
Fiona Ratkoff is grateful to The Myositis Association for enabling her to get back on skis again after being paralyzed with dermatomyositis.
Financial resources availableJune 2, 2023
Myositis can make it hard to earn a living. Financial resources are available for qualified individuals. It never hurts to ask.