The mission of The Myositis Association is to improve the lives of persons affected by myositis, fund innovative research, and increase myositis awareness and advocacy. Our programs and services provide information, support, advocacy, and research for the myositis community.


TMA’s history dates to 1993, when our founder Betty Curry created a nonprofit corporation to serve those affected by inclusion body myositis. 16 patients became the initial members, and today, TMA has nearly 10,000 members all over the world.

Learn More About Our History

Core Values

TMA’s core values are: Diversity & Inclusion, Compassion for the Community, Collaboration, Responsible Governance, Stewardship, Integrity, and Respect. These core values help ensure TMA is cultivating a community where all are valued, included, and empowered. They reflect TMA’s commitment to amplifying patient voices and supporting health equity.

Staff and Governance

Our dedicated staff keeps our operations, resources, and services alive and well for our members. They answer more than 10,000 emails, phone calls and letters each year.

Meet Our Staff

A Board of Directors oversees TMA’s management. Our current board of directors is made up of both myositis patients, care partners, and medical professionals. Our Medical Advisory Board, made up of myositis experts and doctors, is influential in compiling, presenting, and reviewing TMA resources for members.

Funding and Charity Information

Our programs are funded primarily through educational and research grants from corporations, as well as contributions from individual donors and familes. Learn more about supporting TMA.

Legal Name: The Myositis Association
Tax ID#: 54-1660976
IRS Tax Category: 501(c)(3)
State of Incorporation: Virginia
Address: 6950 Columbia Gateway Dr., Suite 370, Columbia, MD 21046
Annual Budget: $1,000,000

We uphold the highest standards as a charity, including financial transparency. View our financials.

Contact Us

If you have a question about The Myositis Association, what we do, or myositis in general, we want to hear from you. Please reach out through our contact form.

Reach Out