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Many new patients have difficulty finding health care practitioners who know about myositis. Patients with dermatomyositis, polymyositis, or necrotizing myopathy are usually treated by rheumatologists. Those with dermatomyositis may also work with a dermatologist. Those with IBM are often treated by neurologists. Some patients also consult with a pulmonologist for problems with lung disease or a cardiologist for problems with heart disease. Most patients can also benefit from the expertise of a physical therapist or rehabilitation specialist to assist in developing an exercise plan.
Patients often see a team of two or three doctors to get the best care possible. Your primary care doctor (internist or family practitioner) can coordinate your day-to-day care between visits to the specialist.
Find a major medical center or university/teaching hospital in your area. These hospitals have medical schools and researchers, so it’s more likely that the health care practitioners who work there will know about myositis and how to treat it. Contact the rheumatology, neurology, or dermatology department at these institutions and ask if they have a physician familiar with myositis on staff.
TMA is connected with several Myositis Research and Clinical Centers around the country. In most cases, current or former TMA medical advisors work at these multidisciplinary centers.
- The Johns Hopkins Myositis Center in Baltimore
- The University of Pittsburgh Myositis Center
- Hospital for Special Surgery in New York City
- Duke University in Durham, North Carolina
- Mayo Clinic in Rochester, Minnesota
- George Washington Medical Faculty Associates Myositis Center in Washington, DC
The American College of Rheumatology web site lists doctors by city and state, so you can locate a doctor in your area or within reasonable traveling distance.
The American Academy of Neurology also has a search page where you can enter your city and state to locate a neurologist in your area.
The American Academy of Dermatology is the largest organization of dermatologists. You can search for a provider here.
The Muscular Dystrophy Association has clinics across the United States. Find one by visiting the MDA web site and enter your zip code, or call 1-800-572-1717.