Our increased virtual environment has allowed for connectivity that surpasses geographic location. In addition to our traditional KIT support groups, TMA is supporting meeting circles with outreach efforts targeted toward supporting and extending our organization’s reach into new communities.

The term affinity group is used as a bringing together of people who have commonality. Affinity groups are for individuals who identify as members of the group and can speak to the experience of being a part of the group from an “I” perspective.

We invite you to learn more about TMA’s Affinity Groups!

Myositis Mavens

Our TMA Myositis Mavens is a leadership group of myositis patients and care partners committed to hosting educational, community outreach, and fundraising events to further the mission of The Myositis Association. Group members receive advanced training on effective storytelling, media outreach, innovation, revenue generation, and identifying tools and resources for outreach success. Each participant independently hosts community-based events.

Women Of Color (WOC)

Organized in 2019, Women of Color is a TMA support and advocacy group that promotes awareness through the 3E’s: Encouragement, Education, and Empowerment. They educate women and communities of color about the different forms of myositis and discuss issues specific to this population. Through workshops and support meetings, WOC will be empowered to go into their communities and bring awareness about myositis.

Veterans

The TMA Veteran’s affinity group hosts patients and caregivers who have prior military service. This group will provide a comfort zone for Veterans to discuss issues specific to their community and increase camaraderie by offering Veterans opportunities to network with each other. It will also support community involvement efforts with Veteran organizations.

Women With IBM

Women With IBM is a new virtual meeting and support group bringing together women with Inclusion Body Myositis in a way that transcends geography.

All are welcome to participate in any of our affinity groups. If you have interest in joining and contributing to one of our existing affinity groups or an interest in consideration to start and facilitate a new one, please reach out to us at tma@myositis.org