Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
Get Involved
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.
Find a Support Group
Myositis Awareness Month - Virtual Summit
In 2022, The Myositis Association continues our quest to support our patients and care partners in being “Encouraged, Engaged, & Empowered”
Saturday, May 21, 2021
Ask The Doctor
A New Year brings NEW opportunities to learn... Join TMA's Ask The Doc session on Thurs. January 20, 2022 featuring Conrad “Chris” Weihl, MD, PhD!
Click here to register!Patient Stories
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
See All of Our Stories
Upcoming Events
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TMA’s Women with IBM Affinity Group Tuesday, January 18, 2022 | 12:00 pm – 1:30 pm
Topic: Federal Advocacy for Rare Neuromuscular Diseases -Patient rights Empowerment and Independence-FDA Reforms-Access to Care and Therapies-Accelerating Therapy Development Speaker:…
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TMA’s Women of Color Affinity Group Meeting Wednesday, January 19, 2022 | 6:30 pm – 8:30 pm
Topic: Social Wellness – Benefits of Support and Affinity Groups Click here to register
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Ask the Doctor Thursday, January 20, 2022 | 6:00 pm – 7:00 pm
A new year brings new opportunities to learn! Click here to register.
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
2021 International Annual Patient Conference: The Power Of Us!
TMA held a 3-day completely virtual experience featuring myositis specialists and expert presenters on everything related to myositis and its treatment. There was educational workshops, clinical presentations, breakout sessions, networking opportunities, a multi-generational focus, patient and provider recognition, virtual social activities, exhibitors, new conference components, a HUGE TMA Announcement, and much, much more!
TMA's Affinity Groups
Our increased virtual environment has allowed for connectivity that surpasses geographic location. In addition to our traditional KIT support groups, TMA is supporting meeting circles with outreach efforts targeted toward supporting and extending our organization’s reach into new communities.
Myositis Awareness Month
May is National Myositis Awareness Month! Celebrate with us by learning how to educate your community about myositis. With our 2021 theme, “A Call to Action,” we’re focusing on supporting and mentoring members on their path to true leadership.
