Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the KIT support group network.Find a Support Group
In this Live Online Discussion, Michelle Vogel will respond to questions on how to navigate the challenging maze of health insurance coverage.
You may leave your questions in advance. You are also welcome to submit questions while the discussion occurs. A transcript of this Live Discussion will be available on TMA’s website after the session.Read More
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
John Mozer: Sporadic Inclusion-Body Myositis
Dale Scott: Polymyositis
Bill Simeral: Polymyositis
Michael Bradbury: Sporadic Inclusion-Body Myositis
CA Northern Support Group Meeting Saturday, October 27, 2018 | 10:00 am – 3:00 pm
Hi everyone! I hope your year has been healthy overall. Here is the agenda for our meeting this month! Sure…
Wisconsin Myositis Support Group Meeting Saturday, October 27, 2018 | 11:30 am – 2:30 pm
For more information, please contact Gail Kamphuis @ (920) 922-4469 or email at email@example.com.
Illinois Support Group Saturday, October 27, 2018 | 12:00 pm – 3:00 pm
Our meeting location is the Edward Elmhurst Memorial Hospital in Elmhurst, IL (the NEW hospital near Roosevelt and York Roads). …
2018 Annual Patient Conference
Folks learned a lot at TMA’s 2018 Annual Patient Conference. For those who were unable to attend (and even those who did but want to revisit some of the sessions), here we provide materials from many of those presentations.
TMA offers its online Community Forum, which has multiple forums where you can post to reach other TMA members who have similar concerns as you. Try it today!
Lenabasum questions answeredOctober 22, 2018
Excitement is building for Corbus Pharmaceutical’s Phase 3 clinical trial testing the safety and effectiveness of their new drug lenabasum…
Research grants awardedOctober 15, 2018
The Myositis Association announces the awarding of three new research grants to fund basic and applied investigations in myositis diseases….
Arimoclomol clinical trial for IBMOctober 8, 2018
There is good news for IBM patients who want to participate in the arimoclomol clinical trial.