Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the KIT support group network.Find a Support Group
In recognition of February as American Heart Month, former TMA medical advisor Dr. Christina Charles-Schoeman will offer a webinar about heart disease and myositis on Thursday, February 21 at 4pm ET. She will make a brief presentation, and then respond to participants’ questions about heart disease and myositis.
Dr. Charles-Schoeman is a rheumatologist and associate professor of medicine at Ronald Reagan UCLA Medical Center in Los Angeles. She is an active investigator in multiple clinical trials involving novel therapies for myositis, and her research in this area includes the study of cardiovascular disease in myositis, including the use of cholesterol-lowering statin drugs and their association with myopathy.
Registration in advance is required.Register here
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
John Mozer: Sporadic Inclusion-Body Myositis
Dale Scott: Polymyositis
Bill Simeral: Polymyositis
Michael Bradbury: Sporadic Inclusion-Body Myositis
AL, MS, FL Northwest Support Group Meeting Thursday, February 21, 2019 | 11:30 am – 2:00 pm
Program: Planning Myositis Month activity; Sharing ZOOM meeting platform information; Nutrition Research shows that people who receive support from a…
Utah Kit Group Support Meeting Saturday, February 23, 2019 | 3:30 pm – 5:00 pm
Research shows that people who receive support from a social network cope better, feel more in control, and have better…
Missouri/So. Illinois KIT Support Group Meeting Saturday, March 23, 2019 | 1:00 pm – 4:00 pm
The meetings will be held in the North Building and not in the hospital. Please enter from the Eastside, which…
2018 Annual Patient Conference
Folks learned a lot at TMA’s 2018 Annual Patient Conference. For those who were unable to attend (and even those who did but want to revisit some of the sessions), here we provide materials from many of those presentations.
TMA offers its online Community Forum, which has multiple forums where you can post to reach other TMA members who have similar concerns as you.
TMA Rides for ResearchFebruary 17, 2019
The Myositis Association is joining together with our friends at Cure IBM to raise money for IBM research by riding…
MYOVISION – Official NoticeFebruary 15, 2019
If you participated in the MYOVISION registry research project, please read this notice.
Myositis and Your Heart webinarFebruary 11, 2019
The heart is a muscle, so just as myositis causes inflammation in other muscles in the body, inflammation can also…