Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
National Briefing: CDC on COVID-19 & Autoimmune Disease – Webinar Friday, April 3, 2020 | 2:00 pm – 3:00 pm
TMA, as member of the National Coalition of Autoimmune Disease Patient Groups, is proud to partner with AARDA on this…
How to stay positive as a myositis warrior during times of crisis – Webinar Friday, April 3, 2020 | 3:00 pm – 4:00 pm
Join us for our Feel Good Friday sessions. During this session, our presenter will share some mindful ways to bring…
San Diego Support Group Meeting Saturday, April 4, 2020 | 10:00 am
Speaker: Diane Moreno, Eldercare Case Manager at JDKell Personal Assistants Topic: How an Eldercare Case Manager May Help Myositis Patients and Their Caregivers Plan for an Unpredictable Future Zoom Video Conference Available: YES Join…
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
2019 Rare Champion of Hope: Collaboration In Research Award by Global Genes Nominated by The Myositis Association
More than 100 individuals and organizations worldwide were nominated by their peers for the 2019 RARE Champion of Hope Awards to honor their notable efforts in rare disease advocacy, science, medical care and treatment, and collaborations. Congratulations to IMACS for this prestigious award!
The Myositis Association's Corporate Video
Help us to advocate and motivate for change. Watch and share this new exciting video from The Myositis Association.
TMA's Inaugural Myositis Virtual Summit
Join TMA for this exciting virtual summit to learn how to manage your myositis.
May 8, 2020
8:00am - 6:00pm ET
FDA allows for emergency use of donated hydroxychloroquine and chloroquine (plaquenil)March 31, 2020
On March 29, 2020 the U.S. Department of Health and Human Services issued a statement that they have “accepted 30 million…
Coronavirus Update -Plaquenil Shortages, IVIG and IbuprofenMarch 26, 2020
On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19. However,…
Can Chloroquine Cure Coronavirus? Not so fast…March 20, 2020
Tom Lloyd, MD PhDAssociate Professor of Neurology and Neuroscience at Johns Hopkins University, Co-Director of the Johns Hopkins Myositis Center…