Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
Get Involved
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the KIT support group network.
Find a Support Group
Myo-Thankful Journey
During this holiday season, we are calling for those in the myositis community to reflect and share what you are most thankful for in your myositis journey.
Learn More
Caring for Caregivers
In celebration of National Caregivers Month, we invite you to join us, along with several guests, for a conversation about the challenges for caring for someone with myositis and resources available to help.
Learn MorePatient Stories
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
Upcoming Events
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AL, MS, FL NW Support Group Zoom Meeting Thursday, November 21, 2019 | 1:00 pm – 2:00 pm
The Myositis Association is inviting you to a scheduled Zoom meeting. Topic: AL, MS, FL NW Support Group Zoom Meeting…
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Arizona Support Group Meeting Friday, December 6, 2019 | 1:00 pm – 3:00 pm
Research shows that people who receive support from a social network cope better, feel more in control, and have better…
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North Carolina Support Group Saturday, January 11, 2020 | 12:00 pm – 2:00 pm
TMA Grants and Fellowships
Research into myositis is a priority of TMA. TMA is actively engaged with the myositis research community in the U.S. and overseas. Through research, the mystery of myositis will be solved and, ultimately, a cure will be available.
2019 Rare Champion of Hope: Collaboration In Research Award by Global Genes Nominated by The Myositis Association
More than 100 individuals and organizations worldwide were nominated by their peers for the 2019 RARE Champion of Hope Awards to honor their notable efforts in rare disease advocacy, science, medical care and treatment, and collaborations. Congratulations to IMACS for this prestigious award!
2019 Annual Patient Conference
Our 2019 Annual Patient Conference brought myositis experts, researchers, doctors, patients, and care partners together to cover a variety of myositis topics in detail, explain new findings, and share personal experiences.
