Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the KIT support group network.Find a Support Group
To enable those who could not otherwise afford to attend TMA’s Annual Patient Conference, a Bob Goldberg Annual Conference Scholarship Fund has been established to help support TMA’s Scholarship program. Donations to this fund will only be used to support the Scholarship program, which has now enabled nearly 100 people to attend TMA’s Annual Patient Conference. Your support of this program is much appreciated!Read More
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
John Mozer: Sporadic Inclusion-Body Myositis
Dale Scott: Polymyositis
Bill Simeral: Polymyositis
Michael Bradbury: Sporadic Inclusion-Body Myositis
Washington State Myositis Support Group Saturday, January 26, 2019 | 12:00 pm – 2:00 pm
Research shows that people who receive support from a social network cope better, feel more in control, and have better…
SW FL KIT Meeting Saturday, February 2, 2019 | 11:00 am – 3:30 pm
For this month’s meeting we will welcome Dr. Tae Chung from Johns Hopkins University. He is a Physiatrist, one of…
Philadelphia KIT Group Meeting Saturday, February 9, 2019 | 12:00 pm – 12:00 pm
There will be a presentation and Q&A with Dr. Victoria Werth, Professor Of Dermatology At The Hospital Of The University…
2018 Annual Patient Conference
Folks learned a lot at TMA’s 2018 Annual Patient Conference. For those who were unable to attend (and even those who did but want to revisit some of the sessions), here we provide materials from many of those presentations.
TMA offers its online Community Forum, which has multiple forums where you can post to reach other TMA members who have similar concerns as you.
Bowling event seeks to “Strike Out Myositis”January 9, 2019
As a young child, Joseph Berretone struggled with JM. For the last ten years, however, the freshman at Duquesne University…
Tricha Shivas joins TMA staffJanuary 8, 2019
The Myositis Association is excited to introduce our newest staff member, Tricha Shivas. She joins TMA as Director of Development…
Rare Disease WeekJanuary 4, 2019
TMA will be participating in Rare Disease Week on Capitol Hill February 24th- February 28th hosted by Rare Disease Legislative Advocates (RDLA)….