Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Join myositis leaders from around the globe at The Myositis Association’s 2020 Annual Patient Conference…TMA’s first Annual Patient Conference in this exciting new decade! This new decade brings new hope, new technologies, new treatments, while offering the opportunity to imagine a new future for myositis diseases.Learn More
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
Minnesota Support Group Meeting Saturday, March 28, 2020 | 2:00 pm – 4:00 pm
Jenny West from Family Means in Stillwater will be our guest speaker sharing information related to caregivers with the group. Our…
Chicago IL Support Group Saturday, April 18, 2020 | 12:00 pm – 3:00 pm
Directions: The location of this meeting is at the Edward Elmhurst Memorial Hospital in Elmhurst, IL (the NEW hospital near Roosevelt and York Roads). …
Colorado Support Group Meeting Saturday, April 25, 2020 | 10:00 am – 12:00 pm
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
2019 Rare Champion of Hope: Collaboration In Research Award by Global Genes Nominated by The Myositis Association
More than 100 individuals and organizations worldwide were nominated by their peers for the 2019 RARE Champion of Hope Awards to honor their notable efforts in rare disease advocacy, science, medical care and treatment, and collaborations. Congratulations to IMACS for this prestigious award!
The Myositis Association's Corporate Video
Help us to advocate and motivate for change. Watch and share this new exciting video from The Myositis Association.
We are calling for those in the myositis community to reflect and share what you are most thankful for in your myositis journey.
Economic Challenges of Long Term CareFebruary 4, 2020
A recent article published in the Courier Newsroom discussed the challenges of caring for those with chronic illnesses and the…
Rare Disease Week on Capitol HillJanuary 15, 2020
TMA is very excited to be participating again Rare Disease Week on Capitol Hill with our partner, The Every Life…
New mouse model for sIBMNovember 5, 2019
The Myositis Association (TMA) is excited to announce the groundbreaking development of the first humanized mouse model for sporadic inclusion…