Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
Michigan Support Group Meeting Saturday, August 8, 2020 | 11:00 am – 12:30 pm
Time: Aug 8, 2020 11:00 AM – 12:30 PM Eastern Time (US and Canada) Join Zoom Meeting https://us02web.zoom.us/j/86335173413 Meeting ID: 863 3517…
Illinois Support Group Meeting Wednesday, August 12, 2020 | 7:00 pm – 9:00 pm
Time: August 12, 2020 07:00 PM – 9:00 PM Central Time Join Zoom Meeting https://us02web.zoom.us/j/81565785614 Meeting ID: 815 6578 5614 Phone: (312) 626-6799…
Arizona Support Group Meeting Friday, August 14, 2020 | 1:00 pm – 3:00 pm
Time: August 14, 2020 01:00 PM – 3:00 PM PST (Arizona) Time(Please note start time by timezone: 1pm PST, 2pm MST,…
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
The Myositis Association's (TMA) Research Funding Yields Novel Data for Potential COVID19 Vaccine Development
The Myositis Association's Corporate Video
Help us to advocate and motivate for change. Watch and share this new exciting video from The Myositis Association.
FDA Listening Session on IBM
FDA held a Listening Session with Inclusion Body Myositis (IBM) patients and care partners on March 5, 2020.
Peter Frampton’ biography Do You Feel Like I Do?: A MemoirJuly 16, 2020
Grammy award winning artist, Peter Frampton’ biography Do You Feel Like I Do?: A Memoir in his own words written…
TMA’s First Twitter Chat on Empowering Patients in the Digital AgeMay 19, 2020
Join Dr. Rohit Aggarwal, Associate Professor of Medicine, Medical Director, Arthritis and Autoimmunity Center, University of Pittsburgh, and Chair of…
How to Cope with Fear and Anxiety During COVID-19April 14, 2020
It is safe to say that all of our lives have significantly changed over the last month. It is important…
Sample Advocacy Letter to Your Public Official on Hydroxychloroquine ShortageApril 10, 2020
Date NameAddress Dear Senator/Representative/Governor _____________________: My name is _______________, and I am a __year old man/woman living with ______(type of myositis). I was first diagnosed _______. …