Find a Support Group

If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.

Find a Support Group

Rock Star Peter Frampton speaks to TMA members

Frampton, an IBM patient, opened the Virtual Annual Patient Conference.

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2020 Annual Patient Conference

This conference will move beyond a series of lectures and provides you unique platforms for collaboration, socialization, education, and FUN!

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Patient Stories

Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.

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Upcoming Events

  • San Diego Support Group Meeting Saturday, December 5, 2020 | 11:00 am

    Pacific Time (US and Canada)Join Zoom Meeting: https://zoom.us/j/93327160709?pwd=Z01NYnpSTXZKbHR0aGtWakRPakdJQT09 Meeting ID: 933 2716 0709 Phone: (669) 900-6833 (RSVP to receive the password to…

  • North Carolina Support Group Meeting Saturday, December 5, 2020 | 12:30 pm – 2:30 pm

    Time: Dec 5, 2020 12:30 PM – 2:30 PM Eastern Time   Join Zoom Meeting: https://us02web.zoom.us/j/84862848475  Meeting ID: 848 6284 8475  Phone: (929) 205-6099  (RSVP…

  • Kansas/Western MO Support Group Thursday, December 10, 2020 | 5:00 pm – 7:00 pm

    Time: Dec 10, 2020 05:00 PM – 7:00 PM CT  Join Zoom Meeting:  https://us02web.zoom.us/j/87258453140 Meeting ID: 872 5845 3140  Phone: (312) 626-6799…

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Myositis 101 for Patients

The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.

COVID-19

The Myositis Association is following reports from the U.S. Centers for Disease Control and Prevention (CDC), the country’s health protection agency, about the Coronavirus Disease 2019 called COVID-19.

The Myositis Association's Corporate Video

Help us to advocate and motivate for change. Watch and share this new exciting video from The Myositis Association.

FDA Listening Session on IBM

FDA held a Listening Session with Inclusion Body Myositis (IBM) patients and care partners on March 5, 2020.

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