Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Wednesday, January 29, 2020 at 3pm ET.
Join Renee Lantner, dermatomyositis patient and former TMA Board member, and Susan Whitacre, MS, RD, LD, Dept of Neurology, University of Kansas Medical Center for a lively discussion on autoimmune disease and nutritionLearn More
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
Georgia Myositis Support Group Saturday, January 18, 2020 | 11:00 am – 2:30 pm
Lunch is included!! We will have a presentation by Diplomat Specialty Infusion Group Diplomat is a Home Infusion company for…
Colorado Support Group Meeting Saturday, January 25, 2020 | 10:00 am – 12:00 pm
San Diego Support Group Saturday, January 25, 2020 | 1:00 pm – 3:00 pm
IBM patient, Paul Schnaubel and his lovely wife Carol, will be joining us as guest speakers for this meeting. Paul,…
TMA Grants and Fellowships
Research into myositis is a priority of TMA. TMA is actively engaged with the myositis research community in the U.S. and overseas. Through research, the mystery of myositis will be solved and, ultimately, a cure will be available.
2019 Rare Champion of Hope: Collaboration In Research Award by Global Genes Nominated by The Myositis Association
More than 100 individuals and organizations worldwide were nominated by their peers for the 2019 RARE Champion of Hope Awards to honor their notable efforts in rare disease advocacy, science, medical care and treatment, and collaborations. Congratulations to IMACS for this prestigious award!
2019 Annual Patient Conference
Our 2019 Annual Patient Conference brought myositis experts, researchers, doctors, patients, and care partners together to cover a variety of myositis topics in detail, explain new findings, and share personal experiences.
We are calling for those in the myositis community to reflect and share what you are most thankful for in your myositis journey.
Rare Disease Week on Capitol HillJanuary 15, 2020
TMA is very excited to be participating again Rare Disease Week on Capitol Hill with our partner, The Every Life…
New mouse model for sIBMNovember 5, 2019
The Myositis Association (TMA) is excited to announce the groundbreaking development of the first humanized mouse model for sporadic inclusion…
2019 Annual Patient Conference a successSeptember 17, 2019
TMA’s 2019 Annual Patient Conference was another amazing event! Each year the Conference provides those who live with myositis the…