Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
Get Involved
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.
Find a Support Group
Myositis Awareness Month - Virtual Summit: A Call To Action
This observance recognizes the need for more research and understanding of myositis in the hope of faster diagnoses, better treatments, and ultimately a cure.
Click here for details
2021 International Annual Patient Conference: The Power Of Us!
TMA Invites you to our 3-day completely virtual experience featuring myositis specialists and expert presenters on everything related to myositis and its treatment.
Click here for detailsPatient Stories
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
Upcoming Events
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New York City/ Long Island Support Group Meeting Tuesday, April 13, 2021 | 4:00 pm – 6:00 pm
Hospital for Special Surgery Topic: Moving Forward. Where Do We Go From Here? Presenter: Suzan Fischbein, LCSW, Senior Work Coordinator…
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Washington Support Group Meeting Saturday, April 17, 2021 | 11:00 am – 1:00 pm
Time: 11:00 am – 1:00 pm PST Location: https://us02web.zoom.us/j/85353093196 Meeting ID: 853 5309 3196 Phone: 253 215 8782 RSVP at supportgroups@myositis.org to receive password.
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TMA’s Woman with IBM Meeting Tuesday, April 20, 2021 | 12:00 pm – 1:30 pm
Time: 12pm to 1:30pm EST Join Zoom Meeting: https://us02web.zoom.us/j/84237680689?pwd=cG0rNjhxdHdsaDFHQnUydXR1RlRMdz09 Meeting ID: 842 3768 0689 Phone: Dial by your location +1 929 205 6099…
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
COVID-19
The Myositis Association is following reports from the U.S. Centers for Disease Control and Prevention (CDC), the country’s health protection agency, about the Coronavirus Disease 2019 called COVID-19.
TMA's Affinity Groups
Our increased virtual environment has allowed for connectivity that surpasses geographic location. In addition to our traditional KIT support groups, TMA is supporting meeting circles with outreach efforts targeted toward supporting and extending our organization’s reach into new communities.
2020 Annual Patient Conference
This conference will move beyond a series of lectures and provides you unique platforms for collaboration, socialization, education, and FUN!
