Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
Central North Carolina Support Group Meeting Saturday, April 18, 2020 | 1:00 pm – 3:00 pm
Location: Zoom Conference Call Join Zoom Meeting https://zoom.us/j/217347156 Meeting ID: 217 347 156 (312) 626-6799 Topic: The guest speaker for this meeting is Dr. Jeffrey…
Kansas/Western Missouri Support Group Saturday, April 18, 2020 | 2:30 pm – 4:30 pm
Zoom Virtual Meeting Join Zoom Meeting: https://zoom.us/j/989575532 Meeting ID: 989 575 532 Phone in: (312) 626-6799 Dr. Constantine Farmakidis, MD will be the…
Northern California Support Group Meeting Saturday, April 25, 2020 | 10:00 am – 2:30 pm
We will be hosting two separate meetings at different times. Please be sure to select the appropriate meeting you’d like…
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
Rare Leader: Mary McGowan, Executive Director, The Myositis Association
Global Genes has profiled The Myositis Association's Executive Director, Mary McGowan as a Rare Leader.
The Myositis Association's Corporate Video
Help us to advocate and motivate for change. Watch and share this new exciting video from The Myositis Association.
TMA's Inaugural Myositis Virtual Summit
Join TMA for this exciting virtual summit to learn how to manage your myositis.
May 8, 2020
8:00am - 6:00pm ET
FDA allows for emergency use of donated hydroxychloroquine and chloroquine (plaquenil)March 31, 2020
On March 29, 2020 the U.S. Department of Health and Human Services issued a statement that they have “accepted 30 million…
Coronavirus Update -Plaquenil Shortages, IVIG and IbuprofenMarch 26, 2020
On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19. However,…
Can Chloroquine Cure Coronavirus? Not so fast…March 20, 2020
Tom Lloyd, MD PhDAssociate Professor of Neurology and Neuroscience at Johns Hopkins University, Co-Director of the Johns Hopkins Myositis Center…