Providing Education, Research, and Support to the Myositis Community
What is Myositis?
Myositis is a muscle-wasting disease that results in fatigue and reduced strength.
Visit the Myositis Library
Browse our library to find helpful discussions, presentations and research studies.
See TMA in the News
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Find a Support Group
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.Find a Support Group
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
Eva Avelino: Polymyositis
Lydia Vazquez: Dermatomyositis
Stanley Prather: Dermatomyositis
Carolyn Ester: Sporadic Inclusion-Body Myositis
San Diego Support Group Meeting Saturday, December 5, 2020 | 11:00 am
Pacific Time (US and Canada)Join Zoom Meeting: https://zoom.us/j/93327160709?pwd=Z01NYnpSTXZKbHR0aGtWakRPakdJQT09 Meeting ID: 933 2716 0709 Phone: (669) 900-6833 (RSVP to receive the password to…
North Carolina Support Group Meeting Saturday, December 5, 2020 | 12:30 pm – 2:30 pm
Time: Dec 5, 2020 12:30 PM – 2:30 PM Eastern Time Join Zoom Meeting: https://us02web.zoom.us/j/84862848475 Meeting ID: 848 6284 8475 Phone: (929) 205-6099 (RSVP…
Kansas/Western MO Support Group Thursday, December 10, 2020 | 5:00 pm – 7:00 pm
Time: Dec 10, 2020 05:00 PM – 7:00 PM CT Join Zoom Meeting: https://us02web.zoom.us/j/87258453140 Meeting ID: 872 5845 3140 Phone: (312) 626-6799…
Myositis 101 for Patients
The Myositis 101 for patients videos by Dr. Rohit Aggarwal, Co-Director of Myositis Center of University of Pittsburgh, Chair of Medical Advisory Board of The Myositis Association (TMA) and author of book “Managing Myositis: A Practical Guide” explain myositis management and treatment in terms that are accessible by all.
The Myositis Association is following reports from the U.S. Centers for Disease Control and Prevention (CDC), the country’s health protection agency, about the Coronavirus Disease 2019 called COVID-19.
The Myositis Association's Corporate Video
Help us to advocate and motivate for change. Watch and share this new exciting video from The Myositis Association.
FDA Listening Session on IBM
FDA held a Listening Session with Inclusion Body Myositis (IBM) patients and care partners on March 5, 2020.
Giving TuesdayNovember 24, 2020
Remember TMA on “Giving Tuesday” Many of you will have received a letter from TMA’s board chairman, Jim Matthews, about…
Myositis MavensNovember 23, 2020
Welcome the Myositis Mavens In early November, TMA launched the “Myositis Mavens,” a group trained in community outreach and education. …
Frampton welcomes TMA members to Virtual Annual Patient ConferenceNovember 5, 2020
Looking fit and energetic, the rock hero kicked off the Virtual Annual Patient Conference by remembering bits of his own…