May is National Myositis Awareness Month! In 2022, The Myositis Association continues our quest to support our patients and care partners in being “Encouraged, Engaged, & Empowered” as we work all month long to create broader community awareness, direct our members to TMA offerings and resources, educate around patient and disease advocacy, share clinical insights, and build a stronger and more connected myositis community.

This May, we’ll give you some powerful tools to tell your story, support each other, expand the world’s understanding of myositis, and, in doing so, shorten the wait between symptoms and diagnosis. Ultimately, your efforts will also speed up the search for better treatments and a cure.

With your help, we can educate the community and the world!

Myositis Awareness Month Events

We have a lot going on at The Myositis Association this May. Our 2022 theme, “Encourage, Engaged & Empower”, will put our members on their path to true leadership. Check out upcoming events below:

May 1Myositis Awareness Month Virtual Kick Off
May 4Choose to Move with Brett Burton
May 9Medical Advisory Board Townhall – Dermatomyositis
May 10Empowerment Clinic – Self Hypnosis for Pain Management
May 11Medical Advisory Board Townhall – Polymyositis
May 13Medical Advisory Board Townhall – Inclusion Body Myositis
May 162021 TMA International Annual Patient Conference PresentationHand Exercise
May 19
Ask the Doc with Dr. Rohit Aggarwal
May 202021 TMA International Annual Patient Conference PresentationSelf Care for Care Partner
May 21 2022 Virtual Summit
May 23Clinical Study in Dermatomyositis
May 25Virtual Family Trivia Night
May 28Day of Giving

Ways to Celebrate Myositis Awareness Month

Will you join us in raising awareness of myositis by informing your friends, family, and the public about myositis? There are a few easy ways to raise awareness this May—and all year round.

  • Tell your story: Take every opportunity to talk about myositis to your friends, family, colleagues, and neighbors. Share the impact of myositis, your struggles and your victories. Check out myositis patient stories for inspiration. Whenever a larger patient group solicits from patients with chronic disease, be there with a story so that myositis can be represented.
  • Contribute: Love what The Myositis Association does? Make a gift, either directly to TMA, or through one of the many campaigns initiated by TMA members, to help advance our mission and ongoing education efforts.
  • Post on social media: Use your social network to spread the word around myositis. Use hashtags #myositis, #TMA, #themyositisassociation. Like, comment, follow and share other patients’ facebook pages, instagrams and tweets. Offer support every chance you get to build a compassionate and supportive community. And don’t forget TMA’s on facebook, twitter and instagram!
  • Collaborate with your physicians: Many myositis patients are first diagnosed and referred by dermatologist, family doctors and nurse practitioners. Reach out to healthcare providers in your community with information about myositis, like that Physician’s Guide to Myositis, help with diagnosis and treatment. Tell your physician about the Myositis Tracker, a way for patients to keep daily records of their progress and symptoms. We now have a guide for dermatologists to identify some rashes on people of color, the Pantone project.
  • Become a member: Join us as a TMA Member to help you stay up-to-date and share myositis news, research, clinical trials, and more all year long. Plus, you’ll have access to our support groups to build your own myositis community.
  • TMA can help: Find our Myositis Awareness Month guide, with all kinds of tips; our library of educational materials, and our growing collection of infographics.

Attend TMA’s Virtual Summit

On Saturday May 21, 2022, from 10:00 am – 6:00 pm EST, TMA will host the 2021 Myositis Virtual Summit! Join us for a day of workshops and learning opportunities highlighting the “Encouraged, Engaged, Empowered” theme. We will also offer clinical and scientific updates, opportunities to connect with others in the myositis community, and access to our corporate partners and exhibitors!

Click here for more details!

Spread the Word on Social Media

Use your social network to show your support and help us spread the word. Download and share our social media resources to amplify the stories of those living with myositis and their loved ones and educate your friends and family.

Download Your Social Media Graphics

Helpful Awareness Resources

To get an overview of what myositis is and what it can entail, take a look at the following resources before getting started with your awareness campaign. You might even share these resources with physicians and other professionals through your outreach.

Get Involved

Thank you for your help and support in raising awareness for myositis. If you have any questions about what you can do to help or need additional resources, please do not hesitate to contact our team. We’re always happy to help however we can.