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Malati Marlene Shinazy loved surfing and took for granted that her body was strong, agile, and capable of what she asked of it. Then her muscles started getting weaker. She noticed standing up out of a chair was harder than it used to be. She began falling with no explanation, and surfing became harder. Malati…
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By Jenna Radke In January of 2022, my life took an unexpected turn. Just one month after graduating from my undergraduate university and embarking on the journey to apply to medical school, I began developing symptoms of dermatomyositis. At the time, I had no idea how this rare and unpredictable disease would affect my life…
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By James “Sudz” Szudzik I am the first born of five children. I have two brothers and two sisters. I am a baby boomer, born in Grand Rapids, Michigan just after World War II. My father served in the US Army in Papua, New Guinea. My mother, who stayed at home and raised all of…
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In recognition of World Myositis Day (September 21), we are highlighting the stories of some of our overseas members. We are grateful to Scott Griffiths for his eager willingness to share his myositis journey. My name is Scott Griffiths. I am 56 years old, and I was diagnosed with inclusion body myositis (IBM) in 2017….
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My name is Cynthia Ikediashi. I reside in Lagos, Nigeria. Early in 2009, while in my third year at the university, I started experiencing weakness in my arms, thighs, and legs accompanied by extreme tiredness, which happened to be my very first symptom. Before the middle of the year, I was able to get an…
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