Celebrate your Successes

By Jim Shea My journey with myositis began in the summer of 2024. I started having trouble getting out of chairs, climbing steps, and even swallowing. At first, I didn’t…

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IBM Does Not Define My Spirit

By Jayne Krusman I’ve always loved volunteering and helping others. That part of me hasn’t changed, even as my life has slowly shifted with the progression of inclusion body myositis…

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One Intentional Step at a Time

When people first meet Ginette Saturne, they often don’t realize that she lives with a rare neuromuscular disease. What they do notice is her calm presence, her attentiveness, and her…

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