• Partnering for Success: Understanding the Role of Your Clinical Trial Representative

    Virtual Event
    Webinar

    Register Here When you join a clinical trial, you’re paired with a clinical trial representative who becomes your primary guide throughout the study. But what exactly does this role include—and how can you build a strong, effective partnership? In this webinar, Mercedes Herrera, an experienced Clinical Research Coordinator with the UCI Center for Clinical Research,...

  • Physical Therapy for Myositis hosted by Hospital of Special Surgery (HSS) New York City Myositis Support Group

    Support or Affinity Group Meeting

    The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan...

  • TMA Minnesota & Wisconsin Myositis Support Group Meeting

    TMA Minnesota & Wisconsin Myositis Support Group
    Virtual Event
    Support or Affinity Group Meeting

    Register Here Join the TMA Minnesota & Wisconsin Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group...

  • TMA Africa Myositis Support Group Meeting

    TMA Africa Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members...

  • TMA Military Veterans with Myositis Affinity Group Meeting

    Virtual Event
    Support or Affinity Group Meeting

    Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...

  • TMA North & South Carolina Myositis Support Group Meeting (Hybrid)

    Lake Wylie Lutheran Church 2906 Highway 160 W, Fort Mill, SC, United States
    Hybrid Event
    Support or Affinity Group Meeting

    The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others, share experiences, and access valuable...

  • TMA Colorado Myositis Support Group Meeting

    TMA Colorado Myositis Support Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...

  • TMA WomenwithIBM Affinity Group Meeting

    TMA WomenwithIBM Affinity Group Meeting
    Virtual Event
    Support or Affinity Group Meeting

    Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. February's meeting...

  • Ask the Expert featuring Dr. Suur Biliciler

    Virtual Event
    Webinar

    Join us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis, treatment options, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in real time...

  • TMA Missouri and Illinois Myositis Support Group Meeting

    Virtual Event
    Support or Affinity Group Meeting

    The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing...

  • TMA Northern California, Oregon & Washington IBM Support Group Meeting

    Virtual Event
    Support or Affinity Group Meeting

    Register here!   Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group...