On September 25, 2006, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by The Myositis Association. Today, many states and localities across the country recognize and celebrate the day with…
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PLEASE ACT! The request that Medicare begin funding power seat elevation and standing systems has been in the works for some time. The Medicare program currently denies coverage for seat elevation and standing systems in power wheelchairs. This means that Medicare beneficiaries with mobility impairments are forced to go without medically necessary wheelchair technology if…
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One lucky fan is going to win the Ultimate Peter Frampton Fan Experience to include a 30 minute virtual meeting with Peter Frampton himself! Grammy-winning guitarist Peter Frampton is one of the most celebrated artists and guitarists in rock history. At 16, he was lead singer and guitarist for British band the Herd. At 18,…
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The Myositis Association is KNEE DEEP in Annual Patient Conference planning! As we are in the process of curating an OUTSTANDING EXPERIENCE for our guests, we want to share some of the HIGHLIGHTS with the community! If you are on the fence about attending, “pop in” with TMA Executive Director Chrissy Thornton on Monday to…
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Both The Myositis Association (TMA) and Myositis Support and Understanding (MSU) have been made aware of circumstances where patients across the United States have experienced difficulty in accessing commonly prescribed medications used in the treatment of autoimmune diseases since the overturn of Roe v. Wade on June 24, 2022. While barriers may vary from state to state,…
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