Dermatologist Dr. David Fiorentino is excited about the possibilities of cell therapies to treat autoimmune conditions like dermatomyositis (DM). In collaboration with rheumatologists and bone marrow transplant specialists at Stanford University, he is conducting a small, phase 1b clinical trial testing KYV-101, a CAR T cell therapy that targets a protein called CD19 on the…
Continue ReadingRemembering Nori
By Julia Nickerson Noriel Cunanan lit up every room he entered. With his radiant smile and a generous, inspiring spirit, he brought energy and optimism wherever he went. A devoted friend, he always offered a helping hand, lifted spirits, and sparked fresh ideas. His battle with myositis began suddenly with a rash in late February…
Continue ReadingFive inspiring myositis stories you need to hear today
TMA deeply values every voice in the myositis community. Every day, we are inspired by individuals living and thriving with myositis. Through your generosity, we’ve been able to share powerful stories of resilience from all corners of the world. Will you help TMA continue sharing stories of hope and support throughout our community? We can’t do…
Continue ReadingFMLA leave for clinical trial participation
The Family and Medical Leave Act (FMLA) has long been a cornerstone of employee rights in the United States, providing eligible employees with up to 12 weeks of unpaid, job-protected leave for various family and medical reasons. In an opinion letter dated November 8, the US Department of Labor (DOL) clarified that FMLA leave can…
Continue ReadingTMA was a game changer for me
Jenna Radke had dreamed about being a doctor when she was little, so she was shocked at the young age of 21 to find her body failing her. Jenna went on a trip to a destination wedding and was in so much joint pain that she could not see the local sights with her family….
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