By Lindsay Key People living with myositis learned about research to advance understanding and treatment of the disease during presentations and a tour of the National Institutes of Health (NIH) Clinical Center in Bethesda, Maryland on Sept. 6. Myositis refers to a set of autoimmune diseases involving chronic inflammation of the muscles. An estimated 75,000…
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In recognition of World Myositis Day (September 21), we are highlighting the stories of some of our overseas members. We are grateful to Scott Griffiths for his eager willingness to share his myositis journey. My name is Scott Griffiths. I am 56 years old, and I was diagnosed with inclusion body myositis (IBM) in 2017….
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My name is Cynthia Ikediashi. I reside in Lagos, Nigeria. Early in 2009, while in my third year at the university, I started experiencing weakness in my arms, thighs, and legs accompanied by extreme tiredness, which happened to be my very first symptom. Before the middle of the year, I was able to get an…
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By Stanford Erickson Two women were, for me, like celebratory bookends to The Myositis Association’s International Annual Patient Conference in Baltimore September 6-8, 2024. One was the opening Friday night keynote speaker, Jessica Buchanan, who, together with a coworker, was held captive for 93 days by ransom-seeking Somali pirates. The second was Saturday night’s Heroes…
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Kaniah Gunter and Holly Jones
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