Blog | The Myositis Association

Bowling event seeks to “Strike Out Myositis”

January 9, 2019January 15, 2019

As a young child, Joseph Berretone struggled with JM. For the last ten years, however, the freshman at Duquesne University has been in remission.

Tricha Shivas joins TMA staff

January 8, 2019

The Myositis Association is excited to introduce our newest staff member, Tricha Shivas. She joins TMA as Director of Development and Strategic Partnerships.

TMA will be participating in Rare Disease Week on Capitol Hill February 24th- February 28th hosted by Rare Disease Legislative Advocates (RDLA). During Rare Disease Week on Capitol Hill 2019, RDLA plans to bring together over 500 patient advocates in Washington, DC for a week of events dedicated to empowering patients, families, friends, and healthcare professionals to become…

Lenabasum in dermatomyositis clinical trial

December 17, 2018January 16, 2019

Corbus Pharmaceuticals is now recruiting dermatomysitis patients for an exciting phase 3 clinical trial for lenabasum. The trial, known as DETERMINE, is designed to evaluate the efficacy and safety of lenabasum for the treatment of dermatomyositis.

BriovaRx teaches TMA about home infusion services for myositis

December 14, 2018December 19, 2018

As part of a new Lunch n’ Learn program at TMA, representatives from BriovaRx visited TMA offices yesterday to teach staff and one of our members about home infusion services and immunoglobulin (IgG) therapy for myositis diseases.