When you’ve just been diagnosed with a rare, debilitating, chronic condition, it can be hard to find your footing. The whole terrain seems to be different, unfamiliar, confusing. Here are 10 tips for first baby steps on your myositis journey from a nurse who knows the territory well. Shawna Nielsen is a registered nurse who has…
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Since 2002, The Myositis Association’s annual research funding program has awarded nearly $8.2 million in research support. We are pleased to announce our 2024 grant awards, funding disease-specific projects in myositis: Our first grant of $80,000 is awarded to Thomas Lloyd, MD, PhD, Chief of Neurology at Baylor College of Medicine, Houston, TX, for his…
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Clinical trials are an important part of the process of testing new medications and treatments to see if they are safe and effective. All medical treatments and devices must be tested with human subjects before they are approved by the FDA and made available for use. Because myositis diseases are rare, it’s sometimes hard for…
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As the TMA blog reflects, 2024 was a busy and exciting year for TMA! We published 45 posts, including 15 personal stories from members sharing how they live their best lives with myositis. This is three times as many blog posts as in 2023 and the most we’ve ever published in a single year! Following…
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Dermatologist Dr. David Fiorentino is excited about the possibilities of cell therapies to treat autoimmune conditions like dermatomyositis (DM). In collaboration with rheumatologists and bone marrow transplant specialists at Stanford University, he is conducting a small, phase 1b clinical trial testing KYV-101, a CAR T cell therapy that targets a protein called CD19 on the…
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