As a teenager, Mia Formato began having unusual skin symptoms. Her red fingers and swollen hands continued in college and were joined by unexplained bouts of fatigue. Eventually she experienced extreme…
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My journey with necrotizing myopathy
By Colleen Layton My journey with myositis has been a little more than twelve years long now! I was first diagnosed at the age of 43 with polymyositis after a…
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This is the greatest community you can imagine
Donna DeFant loves motorcycles. For decades, she hung out with Harley owners and spent her free time riding. In 2003, she started noticing weird bumps on her hands and a…
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The burden and blessing of being both patient and provider
By Jen Swisher Even though she is a medical professional and diagnoses others every day, Jen Swisher still suffered dismissals and misdiagnoses in her two-year journey to a dermatomyositis diagnosis….
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Cutaneous
By Kambiz Roghanchi Livingston, New Jersey, February: A frosty gust nipped at my skin, but the real chill crept from within. Crimson tendrils snaked up my arms, an alien map…
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