How to Cope with Fear and Anxiety During COVID-19

It is safe to say that all of our lives have significantly changed over the last month.  It is important to acknowledge that these are uncertain and unsettling times.  As you continue this challenge each and every day, The Myositis Association walks beside you.   Here are some vital tips to help you cope with…

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Sample Advocacy Letter to Your Public Official on Hydroxychloroquine Shortage

Date NameAddress  Dear Senator/Representative/Governor _____________________:  My name is _______________, and I am a __year old man/woman living with ______(type of myositis).  I was first diagnosed _______.  I writing to you today as a member of the myositis  community because there is a national shortage of hydroxychloroquine. On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19.   I am a member of…

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Autoimmunity may be rising in the United States

By The National Institute of Environmental Health Sciences 4/8/2020 Autoimmunity, a condition in which the body’s immune system reacts with components of its own cells, appears to be increasing in the United States, according to scientists at the National Institutes of Health and their collaborators. In a study published April 8 in Arthritis and Rheumatology,…

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FDA allows for emergency use of donated hydroxychloroquine and chloroquine (plaquenil)

On March 29, 2020 the U.S. Department of Health and Human Services issued a statement that they have “accepted 30 million doses of hydroxychloroquine sulfate donated by Sandoz, the Novartis generics and biosimilars division, and one million doses of chloroquine phosphate donated by Bayer Pharmaceuticals, for possible use in treating patients hospitalized with COVID-19 or for…

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Coronavirus Update -Plaquenil Shortages, IVIG and Ibuprofen

On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19. However, there are no available data from randomized clinical trials to support efficacy, and taking these medications for COVID 19 is not recommended. A recent New York Times Article has noted that a University of Utah…

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