If you or a family member has just received a diagnosis of myositis, you will have plenty of questions and lots of changing emotions. That’s normal. The Myositis Association provides information on this site that should help answer most of your questions. Please take some time to navigate the site for information about your disease and to find support for the days ahead. TMA also has support resources that can help when emotional challenges threaten to overwhelm you. Here are some important sections to start with:
We facilitate both regional in-person and online support groups for those with myositis to connect with others who understand what they’re going through. Learn more about our support groups and how to join.Find Support
You might also be interested in joining the conversation in our myositis community forum.
Find a Doctor
Myositis patients often see a team of two or three doctors to get the best care possible. However, it can be difficult to find a doctor with the knowledge and expertise to treat a rare disease such as myositis. Get tips on finding the right doctor.
Many patients can also benefit from the expertise of a physical therapist or rehabilitation specialist to assist in developing an exercise plan.
Living With Myositis
Being diagnosed with a chronic, rare disease such as myositis can be difficult for both patients and those who care for them. Find resources for living with myositis and making adjustments to accommodate potential limitations.Find Advice and Resources
The Myositis Association also provides resources for veterans.
If there are other questions that you have or support that you’re looking for, please do not hesitate to reach out to our staff for help. Over the years, we have acquired a wide variety of resources and contacts that may help.Contact Us