Myositis Association of Australia is dedicated to providing a network of support for myositis patients and their families; assisting myositis patients to manage their condition; reducing isolation with newsletters, meetings, and events where people can access information and share experiences; supporting research to help find a cure for myositis or improve the quality of life of myositis patients; promoting awareness for myositis to the health profession and the general public.
Myositis Canada is a nonprofit, volunteer organization dedicated to improving the lives of people affected by myositis.
Miositis Chile is a Facebook group created to bring together people with myositis for support and information.
The French Idiopathic Inflammatory Myopathies (IIM) Group of Interest is a part of the French Muscular Dystrophy Association known as AFM-Téléthon. The organization provides patient and family support and education; helps to prepare families for clinical trials; establishes connections between patients, physicians, and researchers; hosts national patient conferences and local support group gatherings; and works to promote research into myositis diseases.
German Myositis Diagnosis Group supports patients and their families who live with myositis. The group also leads discussion groups for patients and families and hosts patient education days, medical symposia, and training courses for physical therapists.
Myositis UK is a support group for patients and care partners in the UK. It distributes a newsletter via email and provides support services for all types of myositis.
Miosites Brasil is a nonprofit organization that aims to inform, support, and guide people with some type of myositis, as well as their family members and caregivers. The organization also raises awareness with healthcare professionals with the objective of making a prompt diagnosis of these diseases, thus avoiding progression and complications. As myositis is extremely rare, Miosites Brazil seeks to provide the greatest amount of quality information so that patients can understand the challenges of living with this disease and the treatment options.
Orphanet is a European-based portal for rare diseases and orphan drugs. It offers searchable databases for rare diseases, orphan drugs, patient organizations, clinics, research projects, and more.