Mike Foley knows what it means to live with uncertainty. Diagnosed with inclusion body myositis (IBM) in 2013 after years of unexplained symptoms and an initial misdiagnosis of ALS, Mike…
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Going the Distance for Dermatomyositis: Trail Update from the PCT
By Kaila Balch When I launched this journey in May, my goal was simple: hike the Pacific Crest Trail in honor of my cousin Brandon, who lives with dermatomyositis, while…
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Tools for Coping with Myositis
By Theresa Curry As she approached midlife, Jenni-Leigh Girard was still growing and learning, but she had already done more than most of us do in a lifetime. She was…
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Finding Strength Through Advocacy
By Deidre M. Champion Before myositis became part of my life, I was always active. I used to run track and compete in hurdles, and I spent a lot of…
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Forever Gardener Keeps Growing
One of the uncertainties Lori Wong faced when she was diagnosed with inclusion body myositis (IBM) was whether she would be able to keep gardening. “I’ve been gardening forever,” she…
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