Myositis can be deadly

TMA executive director Mary McGowan, TMA member and patient advisor Darlene Shelton, and pulmonologist Dr. Cheilonda Johnson were interviewed for an informative article by Ty Fenwick in the Indianapolis Recorder, an African American weekly newspaper in Indiana. The article, “Don’t confuse it with old age: Myositis diseases can be deadly,” highlights the disparity of risk…

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Living with myositis, a mystery to many

The following article about living with myositis appeared in the Orlando Sentinel on Friday, May 17, 2019. See the original article here. By Miyoshi Gordon-Matthews In 1995, I was playing basketball in the driveway with my then 9-year old son when I fell. I did not think much of it. Until the next day, when…

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Myositis Study Findings

Recent study findings from TMA research fellow Dr. Simon Rothwell will soon be published in the medical journal Annals of Rheumatic Diseases. This work is related to myositis autoantibodies and unique genetic differences that we previously did not know about. This is a summary of the soon-to-be published results of this study.

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Peter Frampton diagnosed with IBM

PRESS RELEASE In an interview with journalist Anthony Mason on CBS Saturday Morning this morning, legendary guitarist Peter Frampton revealed that he has been diagnosed with inclusion body myositis (IBM).

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Celebrate Your Rare

PRESS RELEASE February is the shortest month of the year. It also boasts the rarest date on the calendar: February 29, which only comes around once every four years. It’s why the date and the month have been chosen as a time to bring awareness to rare diseases.

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