Economic Challenges of Long Term Care

A recent article published in the Courier Newsroom discussed the challenges of caring for those with chronic illnesses and the economic and financial burdens that families face when dealing with debilitating disease. “Studies indicate that more than half of older Americans will eventually require long-term care, with the average lifetime long-term care costs for Americans…

Continue Reading

Myositis can be deadly

TMA executive director Mary McGowan, TMA member and patient advisor Darlene Shelton, and pulmonologist Dr. Cheilonda Johnson were interviewed for an informative article by Ty Fenwick in the Indianapolis Recorder, an African American weekly newspaper in Indiana. The article, “Don’t confuse it with old age: Myositis diseases can be deadly,” highlights the disparity of risk…

Continue Reading

Living with myositis, a mystery to many

The following article about living with myositis appeared in the Orlando Sentinel on Friday, May 17, 2019. See the original article here. By Miyoshi Gordon-Matthews In 1995, I was playing basketball in the driveway with my then 9-year old son when I fell. I did not think much of it. Until the next day, when…

Continue Reading

Myositis Study Findings

Recent study findings from TMA research fellow Dr. Simon Rothwell will soon be published in the medical journal Annals of Rheumatic Diseases. This work is related to myositis autoantibodies and unique genetic differences that we previously did not know about. This is a summary of the soon-to-be published results of this study.

Continue Reading

Peter Frampton diagnosed with IBM

PRESS RELEASE In an interview with journalist Anthony Mason on CBS Saturday Morning this morning, legendary guitarist Peter Frampton revealed that he has been diagnosed with inclusion body myositis (IBM).

Continue Reading