Thank you Dave , for sharing your journey , I found it really helpful because I was given this diagnosis within past three weeks . So still coming to terms with it and no treatment plan until I meet my Consultant January 11 .
Being an orthopedic surgeon, which is one of the most rigorous and difficult training programs, it must have been very hard to become a patient and to give up all that he worked so hard to achieve. To switch gears from capable physician to patient must have taken great tenacity and ability to adapt. I admire that. This story is as much a motif for any one facing health challenges and having to make their way through the myriad of doctors’ appointments and adjustments. With no treatment for IBM, that also must be frustrating. Remarkable story.
Thanks for sharing your story Dave, it’s interesting how we medically trained people living with myositis somehow manage to be unaware or ignore the signs and symptoms in our own bodies. I was in self-denial too despite the alarm bells ringing at the back of my head. I wish I had applied the same mental workup to myself, as I would do for my friends and family and people I meet. I am glad that you found your way to make the most of the situation, and also to help others who are going through their own diagnostic journey and treatment challenges. Take care and best wishes!
Dave, I just want to thank you so much for making this video. Your comments and your positive outlook and attitude or great encouragement to me today. I was diagnosed with a different form of myositis just a month ago and, as you mentioned, there are some people who do not have supports in their life when going through some thing like this. I am one of those people. but I greatly appreciate the myositis association, and the supports that are provided on this website. Thank you for all that you are doing for myositis patients through this organization. I know you had to adjust your life in many ways, but because of it you have had a positive impact on mine.
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