Folks learned a lot at TMA’s 2018 Annual Patient Conference. For those who were unable to attend (and even those who did but want to revisit some of the sessions), here we provide materials from many of those presentations.
2018 Annual Patient Conference sessions by topic
About myositis
Antisynthetase syndrome – Dr. Floranne Ernste
Presentation
Clinical features and the course of disease in IBM – Dr. Marianne de Visser
Presentation | Video
Diagnosing myositis | Dr. Martin Brown
Video
Diagnosing the skin symptoms of DM | Dr. Jeffrey Callen
Presentation | Video
How myositis affects the heart and lungs | Dr. Tahseen Mozaffar
Video
Myositis 101: A primer for beginners | Dr. Steven Ytterberg
Presentation | Video
New research developments for IBM | Dr. Jens Schmidt
Presentation | Video
Secrets revealed by myositis autoantibodies| Dr. Neil McHugh
Presentation | Video
Understanding necrotizing myopathy – Dr. Olivier Benveniste
Presentation
When myositis overlaps with other disease – Dr. Rossitza Chichkova
Presentation
Caregiving and support
Making aging in place work – Abbie Cornett
Presentation
Practical tips for caregivers – Sue Maillard & Joseph Brey
Presentation | Presentation – Brey
Exercise
Blood flow-restricted exercise for IBM | Dr. Helene Alexanderson
Presentation | Video
Exercise as therapeutic intervention | Dr. Tae Chung
Presentation | Presentation | Video
Getting started and sticking with an exercise plan – Dr. Helene Alexanderson and Sue Maillard
Presentation
Home exercise program for IBM – Dr. Helene Alexanderson and Sue Maillard
Presentation
Home exercise program for DM, PM, and NM– Dr. Helene Alexanderson and Sue Maillard
Presentation
Hand exercise program for IBM – from Malin Regardt
Handout
Classroom introduction to aquatic therapy – Mickey Baron
Presentation | Video
Myositis and…
Myositis and genetics | Dr. Thomas Lloyd and Chris Dotur
Presentation | Presentation | Video
When myositis leads to dysphagia – Dr. Omer Endashaw
Presentation | Video
Q&A sessions
Reports from TMA’s Medical Advisory Board
Video
Q&A – IBM – Dr. Thomas Lloyd and Dr. Conrad Weihl
Video
Q&A – Complications of myositis – Dr. Andrew Mammen
Video
Myositis treatment
Diet and supplements for inflammation | Jacilyn Mikels
Presentation | Video
Individualized home IVIg therapy | James Sheets
Presentation | Video
Integrating conventional and complementary care | Kim Evans
Presentation | Video
Myositis medications and treatments | Dr. Perry Shieh
Presentation (Not yet available) | Video
Other interesting topics
Getting in sync with your healthcare team | Dr. Namita Goyal
Presentation | Video
The gut microbiome and inflammation | Dr. Kanneboyina Nagaraju
Presentation | Video
Have wheelchair, will travel | Abbie Cornett
Presentation | Video
The how and when of mobility devices | Barbara Ruzicka
Presentation | Video
Making aging in place work – Abbie Cornett
Presentation
Managing the medical team – Marianne Moyer
Presentation
Navigating the health insurance maze: From preauthorization through winning the appeals process | Michelle Vogel
Presentation | Video
Safe surfing: Finding reliable health info on the web – Linda Sabatino
Presentation
Sharing adaptive tricks and tips – Bitsy & Terry Anderson, Bonnie & John McClun, and Janet McGlynn
Presentation
Translating the language of science | Ed Johnson
Video
Closing session
A Double Dose of Healthcare Humor | Professional Comedian David Glickman
Video (Not yet available)