Folks learned a lot at TMA’s 2018 Annual Patient Conference.  For those who were unable to attend (and even those who did but want to revisit some of the sessions),  here we provide materials from many of those presentations.

2018 Annual Patient Conference sessions by topic

About myositis

Antisynthetase syndrome – Dr. Floranne Ernste
Presentation

Clinical features and the course of disease in IBM – Dr. Marianne de Visser
Presentation | Video

Diagnosing myositis | Dr. Martin Brown
Presentation (Not yet available) | Video (Not yet available)

Diagnosing the skin symptoms of DM | Dr. Jeffrey Callen
Presentation | Video (Not yet available)

How myositis affects the heart and lungs | Dr. Tahseen Mozaffar
Video

Myositis 101: A primer for beginners | Dr. Steven Ytterberg
Presentation | Video

New research developments for IBM | Dr. Jens Schmidt
Presentation | Video (Not yet available)

Secrets revealed by myositis autoantibodies| Dr. Neil McHugh
Presentation | Video

Understanding necrotizing myopathy – Dr. Olivier Benveniste
Presentation

When myositis overlaps with other disease – Dr. Rossitza Chichkova
Presentation

Caregiving and support

Making aging in place work – Abbie Cornett
Presentation

Practical tips for caregivers – Sue Maillard & Joseph Brey
Presentation | Presentation – Brey

Exercise

Blood flow-restricted exercise for IBM | Dr. Helene Alexanderson
Presentation | Video

Exercise is medicine – Dr. Helene Alexanderson and Sue Maillard
Presentation | Video

Exercise as therapeutic intervention | Dr. Tae Chung
Presentation | Presentation | Video (Not yet available)

Getting started and sticking with an exercise plan – Dr. Helene Alexanderson and Sue Maillard
Presentation | Video

Home exercise program for IBM – Dr. Helene Alexanderson and Sue Maillard
Presentation

Home exercise program for DM, PM, and NM– Dr. Helene Alexanderson and Sue Maillard
Presentation

Hand exercise program for IBM – from Malin Regardt
Handout

Classroom introduction to aquatic therapy – Mickey Baron
Presentation | Video (Not yet available)

Exercise is medicine | Dr. Helene Alexanderson and Susan Maillard
Presentation | Video (Not yet available)

Myositis and…

Myositis and genetics | Dr. Thomas Lloyd and Chris Dotur
Presentation | Presentation | Video (Not yet available)

When myositis leads to dysphagia – Dr. Omer Endashaw
Presentation | Video (Not yet available)

Q&A sessions

Reports from TMA’s Medical Advisory Board
Video

Q&A – IBM – Dr. Thomas Lloyd and Dr. Conrad Weihl
Video

Q&A – Complications of myositis – Dr. Andrew Mammen
Video

Myositis treatment

Diet and supplements for inflammation | Jacilyn Mikels
Presentation | Video

Individualized home IVIg therapy | James Sheets
Presentation | Video (Not yet available)

Integrating conventional and complementary care | Kim Evans
Presentation | Video

Myositis medications and treatments | Dr. Perry Shieh
Presentation (Not yet available) | Video

Other interesting topics

Getting in sync with your healthcare team | Dr. Namita Goyal
Presentation | Video

The gut microbiome and inflammation | Dr. Kanneboyina Nagaraju
Presentation | Video (Not yet available)

Have wheelchair, will travel | Abbie Cornett
Presentation | Video

The how and when of mobility devices | Barbara Ruzicka
Presentation | Video

Making aging in place work – Abbie Cornett
Presentation

Managing the medical team – Marianne Moyer
Presentation

Navigating the health insurance maze: From preauthorization through winning the appeals process | Michelle Vogel
Presentation | Video (Not yet available)

Safe surfing: Finding reliable health info on the web – Linda Sabatino
Presentation

Sharing adaptive tricks and tips – Bitsy & Terry Anderson, Bonnie & John McClun, and Janet McGlynn
Presentation