Advocating for Chronic Conditions, Entitlements and Social Services (A.C.C.E.S.S.) is dedicated to helping find solutions to many of the social and economic problems that confront families facing chronic conditions.
American Academy of Dermatology
The American Academy of Dermatology is the largest, most influential and most representative of all dermatologic associations. With a membership of more than 13,700, it represents virtually all practicing dermatologists in the United States. Find a dermatologist on this site.
American Academy of Neurology
The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 18,000 neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders.
American College of Rheumatology
The American College of Rheumatology (ACR) is the professional organization of rheumatologists and associated health professionals. Members include practicing physicians, research scientists, nurses, physical and occupational therapists, psychologists, and social workers. Find a rheumatologist.
American Disabilities Act/Justice Department
The Department of Justice ADA Home Page. The ADA prohibits discrimination on the basis of disability in employment, programs and services provided by state and local governments, goods and services provided by private companies, and in commercial facilities.
The Arthritis Foundation site includes health information about types of arthritis and arthritis-related diseases, news and research updates, as well as practical tips for managing arthritis symptoms.
The primary mission of assistivetech.net is to provide increased access to information on assistive technology devices, services and other disability-related resources for people with disabilities and the general public.
Assisted Living Directory
A personal first-hand family account of the difficult task of placing a senior loved-one into assisted living or another care environment who is suffering from Dermatomyositis.
Search for current clinical trials. The National Institutes of Health, through its National Library of Medicine, has developed ClinicalTrials.gov to provide the public with current information about clinical research studies.
Identify and contact your elected officials.
Cure JM Foundation is a volunteer organization founded and managed by families of children dealing with juvenile myositis. Cure JM assists volunteers in raising awareness and funds for research, as well as providing a Family Support Network.
These images are helpful for distinguishing dermatological features of dermatomyositis.
DM/PM & You
A helpful collection of resources for patients and their care partners dealing with the challenges of polymyositis and dermatomyositis.
Guidestar is the national database of nonprofit organizations. Find information about the operations and finances of over 800,000 charities.
Hospital for Special Surgery, Rheumatology Division
Find informative lectures on myositis and a range of topics: myositis overview, physical therapy, medications and a neurologists’ perspective.
Shop online through iGive and a percentage of your bill will be donated to TMA. Register and choose TMA as the cause you would like to support.
Independent Living USA
Independent Living Centers are typically nonprofit, community-based organizations providing services and advocacy for persons with all types of disabilities. Their goal is to assist individuals with disabilities to achieve their maximum potential within their families and communities. They work to assure access to housing, employment, transportation, communities, recreational facilities, and health and social services.
International Society for Stem Cell Research (ISSCR)
ISSCR is a nonprofit professional membership society open to scientists, clinicians, researchers, advocates, public and private institutions and others with an interest in stem cell research. The organization is dedicated to advancing stem cell research, providing public and professional education, and serving as a forum for discussion of associated ethical issues.
Johns Hopkins Myositis Center
The Johns Hopkins Myositis Center is one of the first multidisciplinary centers of its kind that focuses on the diagnosis and management of myositis. Combining the medical expertise of specialists in the fields of rheumatology, neurology and pulmonology, the Center creates a profound benefit for myositis patients.
MedlinePlus is the National Institutes of Health’s Web site for patients and their families and friends. Produced by the National Library of Medicine, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.
Myositis Support Group, United Kingdom
Free to UK residents, the UK Support Group distributes a newsletter via email and provides support services for all types of myositis.
National Family Caregivers Association (NFCA)
The National Family Caregivers Association (NFCA) exists to support family caregivers and to speak out publicly for caregivers’ needs.
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases, the training of basic and clinical scientists to carry out this research, and the dissemination of information on research progress in these diseases.
National Institute of Environmental Health Sciences (NIEHS)
Human health and human disease result from three interactive elements: environmental factors, individual susceptibility and age. The mission of the National Institute of Environmental Health Sciences (NIEHS) is to reduce the burden of human illness and dysfunction from environmental causes by understanding each of these elements and how they interrelate.
National Institute of Neurological Disorders and Stroke (NINDS)
The mission of NINDS is to reduce the burden of neurological disease—a burden borne by every age group, by every segment of society, by people all over the world.
National Institutes of Health (NIH)
Begun as a one-room Laboratory of Hygiene in 1887, the National Institutes of Health today is one of the world’s foremost medical research centers, and the Federal focal point for medical research in the U.S. Simply described, the goal of NIH research is to acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability, from the rarest genetic disorder to the common cold.
National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD) is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
PubMed is a service of the National Library of Medicine. This service allows a keyword search of the 9 million citations in MEDLINE and Pre-MEDLINE (with links to participating on-line journals), and other related databases.
A service of the National Institutes of Health and National Library of Medicine, PubMed Central provides free, open access to full-text scientific research and review articles.
Retirement USA is the largest and the most comprehensive internet informational directory for retirement resources. Their directory provides complete solutions for your lifestyle delivering value to all who come visit.
The Job Accommodation Network (JAN)
The Job Accommodation Network (JAN) is not a job placement service, but an international toll-free consulting service that provides information about job accommodations and the employability of people with disabilities. JAN also provides information regarding the Americans with Disabilities Act (ADA).
The Muscular Dystrophy AssociationThe Muscular Dystrophy Association (MDA) is a voluntary health agency—a dedicated partnership between scientists and concerned citizens aimed at conquering 40 neuromuscular diseases that affect more than one million Americans.
NeurologyChannel™ is developed and monitored by leading neurologists. Some of their main features include NeurologyForum, MDLocator, NeurologyWorld, Neurology Videos, Live Chats, etc.
Adult Day Care
Adult day care centers are senior care locations that are open during normal business hours and provide various care services, supervision and social interaction for the elderly.
Assisted Living Facilities
Assisted living has emerged as a popular senior living option for those elderly people seeking a place to reside that offers medical monitoring and minor medical care while still offering personal privacy and freedom.
Alabama Nursing Home Association
ANHA was established in 1951 as a statewide network of professionals dedicated to providing excellence and quality care for Alabama’s elderly in need.
National Adult Day Services Association
NADSA advances the national development, recognition and use of adult day services. Adult day service centers provide a coordinated program of professional and compassionate services for adults in a community-based group setting.
Skilled Nursing Facilities
Skilled Nursing Facilities, more commonly known as nursing homes, are a healthcare option for seniors that are in need of constant medical attention.
Home Health Care
Home health care companies offer a wide range of skilled medical services such as nursing care, physical therapy and occupational therapy from qualified medical professionals in addition to various services from home health aides.