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    In The News

    Sample Advocacy Letter to Your Public Official on Hydroxychloroquine Shortage

    April 10, 2020April 16, 2020

    Date NameAddress  Dear Senator/Representative/Governor _____________________:  My name is _______________, and I am a __year old man/woman living with ______(type of myositis).  I was first diagnosed _______.  I writing to you today as a member of the myositis  community because there is a national shortage…

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    Autoimmunity may be rising in the United States

    April 8, 2020April 8, 2020

    By The National Institute of Environmental Health Sciences 4/8/2020 Autoimmunity, a condition in which the body’s immune system reacts with components of its own cells, appears to be increasing in…

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    FDA allows for emergency use of donated hydroxychloroquine and chloroquine (plaquenil)

    March 31, 2020March 31, 2020

    On March 29, 2020 the U.S. Department of Health and Human Services issued a statement that they have “accepted 30 million doses of hydroxychloroquine sulfate donated by Sandoz, the Novartis generics…

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    Coronavirus Update -Plaquenil Shortages, IVIG and Ibuprofen

    March 26, 2020March 26, 2020

    On March 19, it was announced that chloroquine and hydroxychloroquine were showing promise in the treatment for COVID 19. However, there are no available data from randomized clinical trials to…

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    Can Chloroquine Cure Coronavirus? Not so fast…

    March 20, 2020March 20, 2020

    Tom Lloyd, MD PhDAssociate Professor of Neurology and Neuroscience at Johns Hopkins University, Co-Director of the Johns Hopkins Myositis Center In a press conference today, President Trump discussed what the…

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