Economic Challenges of Long Term Care

A recent article published in the Courier Newsroom discussed the challenges of caring for those with chronic illnesses and the economic and financial burdens that families face when dealing with debilitating disease. “Studies indicate that more than half of older Americans will eventually require long-term care, with the average lifetime long-term care costs for Americans…

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Rare Disease Week on Capitol Hill

TMA is very excited to be participating again Rare Disease Week on Capitol Hill  with our partner, The Every Life Foundation (February 24-29).  Last year, we were able to secure 5 meetings with legislators, attended a briefing, had a tour of the clinic at NIH and lunch with NIH myositis researchers.  This year looks to…

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Eva Avelino

Eva Avelino: Polymyositis

Eva, from the San Francisco Bay area, was diagnosed with polymyositis in 2012. As a registered nurse, she knew something was wrong when she was unable to walk up the stairs after her shift.

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Lydia Vasquez

Lydia Vazquez: Dermatomyositis

Lydia is from Melbourne, Florida. She was a military nurse when she started feeling symptoms. She stopped working, but the symptoms continued to worsen until she was diagnosed with dermatomyositis.

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