TMA is very excited to be participating again Rare Disease Week on Capitol Hill  with our partner, The Every Life Foundation (February 24-29).  Last year, we were able to secure 5 meetings with legislators, attended a briefing, had a tour of the clinic at NIH and lunch with NIH myositis researchers.  This year looks to be just as exciting with an FDA day, opportunities to meet with legislators, and an opportunity to meet with myositis NHA researchers.

Unfortunately, the opportunity to apply for travel stipends through The Every Life Foundation has closed, so unless you were awarded a stipend, travel costs will be incurred at your own expense.

Please be sure to contact Tricha Shivas at if you plan to attend any of these events so we can coordinate a time to meet-up with you.

One comment on “Rare Disease Week on Capitol Hill”

  1. 1
    Emma Amsler on May 7, 2020

    I just received a diagnosis of having Anti- Synthetase syndrome.
    I am female, 50 years of age. My symptoms came on literally over a weekend.
    I would very much like to attend and receive any information on upcoming events.

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