TMA’s First Twitter Chat on Empowering Patients in the Digital Age

Join Dr. Rohit Aggarwal, Associate Professor of Medicine, Medical Director, Arthritis and Autoimmunity Center, University of Pittsburgh, and Chair of TMA’s Medical Advisory Board for TMA’s first twitter chat on “Empowering the Patient in the Digital Age on May 20th at 12:00pm ET. This twitter chat, led by Dr. Aggarwal on behalf of TMA, will…

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Economic Challenges of Long Term Care

A recent article published in the Courier Newsroom discussed the challenges of caring for those with chronic illnesses and the economic and financial burdens that families face when dealing with debilitating disease. “Studies indicate that more than half of older Americans will eventually require long-term care, with the average lifetime long-term care costs for Americans…

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Rare Disease Week on Capitol Hill

TMA is very excited to be participating again Rare Disease Week on Capitol Hill  with our partner, The Every Life Foundation (February 24-29).  Last year, we were able to secure 5 meetings with legislators, attended a briefing, had a tour of the clinic at NIH and lunch with NIH myositis researchers.  This year looks to…

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New mouse model for sIBM

The Myositis Association (TMA) is excited to announce the groundbreaking development of the first humanized mouse model for sporadic inclusion body myositis (sIBM) achieved through TMA’s innovative Pilot Research Funding Program.  With the generous funding of The Myositis Association’s Pilot Research Grant, Dr. Thomas Lloyd, a member of TMA’s Medical Advisory Board, and his research…

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2019 Annual Patient Conference a success

TMA’s 2019 Annual Patient Conference was another amazing event! Each year the Conference provides those who live with myositis the opportunity to gather to learn about their disease as well as to meet and share experiences with others who understand their challenges. Nearly 500 people attended from all over the US as well as folks…

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