TMA medical advisor and patient advocate Ingrid de Groot insists patients be involved in medical research.
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Wellness and self-care while living with myositis
Many community members responded when we asked them to share their stories and insights to help others. Here is some of the best wellness and self-care advice from fellow TMA members!
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Polymyositis and interstitial lung disease: My dual diagnosis story
By Linda Z. The journey for many of us with myositis can be complicated by overlapping diagnoses such as Sjogren’s, lupus, or fibromyalgia to name but a few. For me, this was polymyositis and interstitial lung disease (ILD). A dual diagnosis often means juggling varying demands in medications, treatments, physicians, and prognoses. My dual diagnosis…
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TMA founder Betty Curry: A force to be reckoned with
By Theresa Curry She was a successful artist, both critically and financially, she started businesses, taught others how to start businesses, brokered real estate, developed high-end subdivisions, and owned a business management firm. All these were minor battles, mere projects compared to the challenges Betty Curry faced at 64 years old when she was diagnosed…
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TMA’s Find a Doctor tool just got better!
It can be hard to find a doctor who knows what myositis is and how to treat it. This tool can help.
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