Our thanks to all of you for making TMA’s Virtual Annual Patient Conference the biggest one ever, reaching more than 600 people with myositis, their families and care partners. From the inspiring greeting from rock legend Peter Frampton, himself an IBM patient, to the attendees who still continue informal chat room conversations well after the…
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Grammy award winning artist, Peter Frampton’ biography Do You Feel Like I Do?: A Memoir in his own words written with acclaimed music journalist Alan Light, will be published in hardcover, e-book, and audio formats on October 20 by Hachette and is available for pre-order NOW. In this book, Frampton shares stories of his diverse…
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Join Dr. Rohit Aggarwal, Associate Professor of Medicine, Medical Director, Arthritis and Autoimmunity Center, University of Pittsburgh, and Chair of TMA’s Medical Advisory Board for TMA’s first twitter chat on “Empowering the Patient in the Digital Age on May 20th at 12:00pm ET. This twitter chat, led by Dr. Aggarwal on behalf of TMA, will…
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A recent article published in the Courier Newsroom discussed the challenges of caring for those with chronic illnesses and the economic and financial burdens that families face when dealing with debilitating disease. “Studies indicate that more than half of older Americans will eventually require long-term care, with the average lifetime long-term care costs for Americans…
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TMA is very excited to be participating again Rare Disease Week on Capitol Hill with our partner, The Every Life Foundation (February 24-29). Last year, we were able to secure 5 meetings with legislators, attended a briefing, had a tour of the clinic at NIH and lunch with NIH myositis researchers. This year looks to…
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