Meet TMA’s Interim Executive Director

Rhonda Buckley-Bishop is a seasoned nonprofit management executive. With more than 25 years of experience in leadership roles, both interim and permanent, she is passionate about strengthening nonprofit organizations. Rhonda has worked with organizations in both growth and crisis situations, and her special talent is fortifying teams so they can achieve or expand their organizations’ missions….

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2023 Regional Conference

You are invited to attend the Regional Conference for Myositis Patients hosted by The University of Kansas Medical Center and The Myositis Association. Speakers include Dr. Mazen Dimachkie, Dr. Duaa Jabari, Dr. Mamatha Pasnoor, as well as physical therapists Claude Lamoureux and Sandhya Sasidharan. This conference is provided free of charge.

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Today is National Myositis Awareness Day and we honor our HEROES!

On September 25, 2006, the US House of Representatives approved the goals and ideals of a “National Myositis Awareness Day” to be observed on September 21. The proclamation endorsing National Myositis Awareness Day capped a years-long effort by The Myositis Association. Today, many states and localities across the country recognize and celebrate the day with…

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Medicare Coverage of Seat Elevation and Standing Systems – Public Comments Accepted Through September 14, 2022

PLEASE ACT! The request that Medicare begin funding power seat elevation and standing systems has been in the works for some time.  The Medicare program currently denies coverage for seat elevation and standing systems in power wheelchairs. This means that Medicare beneficiaries with mobility impairments are forced to go without medically necessary wheelchair technology if…

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Peter Frampton is supporting The Myositis Association!

One lucky fan is going to win the Ultimate Peter Frampton Fan Experience to include a 30 minute virtual meeting with Peter Frampton himself! Grammy-winning guitarist Peter Frampton is one of the most celebrated artists and guitarists in rock history. At 16, he was lead singer and guitarist for British band the Herd. At 18,…

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