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TMA’s 2020 Virtual Annual Patient Conference provided a unique opportunity for myositis patients, care partners, and experts to come together to address topics including myositis research, technological advancements, clinical care best practices, support, resources and the needs of myositis patients worldwide. We are excited to share our video presentations, beginning next Friday January 15th! Join…
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Join The Myositis Association on Tuesday January 12, 2021 at 6:00 pm est for a COVID 19 Vaccinations & Myositis webinar with panel discussion! The Myositis Association has received many questions from the community about the Covid-19 vaccines and whether they are appropriate for people with myositis. The situation is complex (multiple vaccines, different timeline for approvals…
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The Myositis Association has received many questions from the community about the Covid-19 vaccines and whether they are appropriate for people with myositis. The situation is complex (multiple vaccines, different timeline for approvals in different countries, availability issues) and is further compounded by each individual’s medical condition. TMA recommends that people with myositis make their own decision on whether to…
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In a two-part video series, Dr. Rohit Aggarwal, chair of TMA’s board of directors, answered specific questions from myositis patients. He also released a video on the overall effectiveness and safety of the vaccines. You can find both videos here. The following are Dr. Aggarwal’s answers to the most common questions asked by myositis patients. Thanks to…
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Welcome the Myositis Mavens In early November, TMA launched the “Myositis Mavens,” a group trained in community outreach and education. The term “maven” comes from Yiddish, meaning “one who understands.” Mavens are those with deep understanding acquired through experience over the years, and TMA believes this is a fitting title for our trained patients and…
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