Thank you to all those who participated, presented, and planned a month’s worth of extraordinary programming, making May’s Myositis Awareness Month such a success! This dedication, insight, and passion have…
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The full-time job of living rare
When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA, in partnership with Nori’s Fight and Myositis International Health and Research Collaborative Alliance…
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We Care for Rare Summit: Celebrating myositis science and patient stories on Rare Disease Day
When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA brought the myositis community together virtually for the We Care for Rare Summit….
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TMA board vice chair testifies in support of Georgia’s Hope for Patients Act
On Monday, February 10, 2025, Rich DeAugustinis, Vice Chair of TMA’s Board of Directors, testified to the Georgia Senate Committee on Health and Human Services in support of the Georgia Hope…
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TMA awards nearly half a million dollars in myositis research grants
The Myositis Association (TMA) recognizes that the best hope for a cure for myositis diseases lies in research. Since 2002, TMA’s annual research grants program has approved 68 projects totaling nearly…
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