Post, tweet, like love, & share

Social media has become an integral part of our daily lives over the past 10 years. These social sharing platforms are now connecting people across space and time — old high-school friends, and strangers with common interests around the globe.  They are powering change and raising awareness and funds for important causes.

TMA will launch a social media campaign during the month of May that will highlight facts and stories to help promote awareness of the disease. We need you (and your network) to help expand the reach of this campaign by Liking/Loving, Sharing, Re-Tweeting, and otherwise promoting these posts and tweets, images, and personal videos.

Be sure to check TMA’s Facebook and Twitter pages to see the newest available content. This will include shareable facts, stories, videos (hopefully yours), and other images to help you join the effort.

Ok, what should I say?

You’ve got a Facebook page or Twitter account and you want to raise awareness. Step 1, complete!

Now, think about what you want people to know about myositis. What would have helped you when you were looking for a diagnosis, or as a newly diagnosed patient. (Consider checking out our ideas for shooting a short video, which has tips for messaging and scripts.)

When you’re on Twitter, you’ll have to get creative.  Remember, you only have 140 characters to tell your story! Tag us too! @TheMyositisAssc

Here are some ideas:
#MyositisAwareness is important to me b/c I had
symptoms for 10yrs b4 a doc said #myositis.

Big TY to friends & fam who #KnowMyositis and
get that some days I need more help than others.

As soon as my doctor said #myositis I was online.
Grateful to @TheMyositisAssc for research, info &
support. #TMACanHelp

1st the rash looked like sunburn but then I was so weak I couldn’t walk.
I’ve been in remission now for 6 mos. #MyositisStory  #KnowMyositis

Don’t forget to use campaign hashtags!

#MyositisAwareness   #KnowMyositis   #MyositisStory
#TMACanHelp    #Myositis


What’s a hashtag and why/how should I use them?
A hashtag is a word or phrase preceded by a hash or pound sign (#) that is used to identify messages on a specific topic.

On Twitter, the # turns any word or group of words that directly follow it into a searchable link. This allows users to organize comments and track discussion topics based on those keywords. But remember, no spaces allowed!

How do I tag a person or group?
If you want to message a person on Twitter or Facebook, you can “tag” them. Using @ before a person’s Facebook name or Twitter handle will post/tweet to them directly, letting them know you have written.  A hashtag will not.