Attend a TMA support or affinity group to connect with others living with myositis. You can attend any group, regardless of where you live. Local and worldwide groups are available—just register for the next meeting. For questions, email supportgroups@myositis.org or fill out this volunteer survey if you’d like to be trained to help lead a group.

TMA Regional Support Groups


TMA Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formerly known as TMA Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Email co-leader Dave Volk at Volk@myositis.org. Register here.

TMA Myositis Africa Support Group meets on the second Tuesday of every month from 7-8:30 PM West Central Africa Standard Time. Email co-leader Cynthia Ikediashi at Ikediashi@myositis.org. Register here.

TMA Alabama is currently seeking leadership. Submit your interest here.

Residents of Alabama attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Alaska is currently seeking leadership. Submit your interest here.

Residents of Alaska attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Arizona and Nevada Myositis Support Group meets every three months on the first Saturday (February, May, August & November) at 1:00 PM AZT. Email co-leader Linda Thomas at Thomas@myositis.org. Register here.

TMA Arkansas is currently seeking leadership. Submit your interest here.

Residents of Arkansas attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Northern California Myositis Support Group meets every two months on the first Monday at 6:30 PM PT, although this may be subject to change depending on leader availability. Email co-leader Shawna Nielsen at Nielsen@myositis.org. Register here.

TMA Northern California, Oregon & Washington Inclusion Body Myositis (IBM) Support Group meets every month on the third Friday at 5:00 PM PT. This group is for residents of Northern California, Oregon and Washington who are diagnosed with Inclusion Body Myositis (IBM). Email co-leader Malati Shinazy at Shinazy@myositis.org. Register here.

TMA Southern California Myositis Support Group meets 3-4 times a year and is open to all myositis diagnoses. Email co-leader Rhonda Rogers at Rogers@myositis.org. Register here.

TMA Members living in Canada can attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

Myositis Canada (MyoCan) is an independent, Canada-based nonprofit organization serving people affected by myositis. While not affiliated with The Myositis Association, we share a common mission of supporting patients, raising awareness, and advancing research. Canadian members may wish to contact Myositis Canada directly for local resources and support.

TMA Colorado Myositis Support Group meets on the second Saturday of each month at 12:00 PM MT. Email co-leader Jim Milani at Milani@myositis.org. Register here.

TMA Connecticut is currently seeking leadership. Submit your interest here.

Residents of Connecticut attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA MD, DE, DC and Northern Virginia Myositis Support Group meets every two months on the third Saturday at 1:00 PM ET. Email co-leader Angela Hopp at Hopp@myositis.org. Register here.

TMA MD, DE, DC and Northern Virginia Myositis Support Group meets every two months on the third Saturday at 1:00 PM ET. Email co-leader Angela Hopp at Hopp@myositis.org. Register here.

TMA Southwest Florida Myositis Support Group invites all Florida residents to join their quarterly meetings on the first Saturday of February, May, August and November. Please see calendar for details about which meetings will be hybrid (in-person and virtual). Email co-leader Donna DeFant at DeFant@myositis.org. You can register for the virtual option here.

TMA Georgia Myositis Support Group meets monthly on the fourth Saturday from 10:30-11:30 AM ET except December. Email co-leader Dr. Terri Lockhart at Lockhart@myositis.org. | Register here.

TMA Greece meets on the first Monday of each month at 7 PM Eastern European Time. Meeting conducted in Greek. Email leader Maria Dourida at Dourida@myositis.org. Register here.

TMA Hawaii is currently seeking leadership. Submit your interest here.

Residents of Hawaii attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Idaho, Wyoming and Utah Myositis Support Group meets every three months on the third Saturday at 1:00 PM MT. Email leader Angie Mendenhall at Mendenhall@myositis.org. Register here.

TMA Missouri & Illinois Myositis Support Group meets each month on the third Thursday at 6:30 PM CT. Email leader Dave Volk at Volk@myositis.org. Register here.

Residents of Indiana attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Iowa is seeking leadership. Submit your interest here.

Residents of Iowa attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Kansas & Western Missouri Myositis Support Group meets 3-4 times per year. Email co-leader Susan McLoughlin at McLoughlin@myositis.org. Register here.

Residents of Kentucky attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Louisiana is currently seeking leadership. Submit your interest here.

Residents of Louisiana attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Maine is currently seeking leadership. Submit your interest here.

Residents of Maine attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA MD, DE, DC and Northern Virginia Myositis Support Group meets every two months on the third Saturday at 1:00 PM ET. Email co-leader Angela Hopp at Hopp@myositis.org. Register here.

TMA Massachusetts and Rhode Island is currently seeking leadership. Submit your interest here.

Residents of Massachusetts attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Michigan Myositis Support Group meets every three months on the second Wednesday at 1:30 PM ET, although this may be subject to change depending on leader availability. This group is for all auto-immune types of myositis (those with IBM can also attend TMA Michigan IBM). Email leader Veronica Fatura at Fatura@myositis.org. Register here.

TMA Michigan IBM Support Group meets 3-4 times per year (three times in person and once online). This group is for residents of Michigan who are diagnosed with Inclusion Body Myositis (IBM), although all are welcome to attend! Please see events calendar or email co-leader Deb Grutter at Grutter@myositis.org to find out when this group meets next.

TMA Minnesota & Wisconsin Myositis Support Group meets every two months on the first Tuesday at 6:00 PM CT. Email co-leader Lindsay Guentzel at Guentzel@myositis.org. Register here.

TMA Mississippi is currently seeking new leadership. Submit your interest here.

Residents of Mississippi attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Missouri & Illinois Myositis Support Group meets every month on the third Thursday at 6:30 PM CT. Email co-leader Dave Volk at Volk@myositis.org. Register here.

TMA Kansas & Western Missouri Myositis Support Group meets 3-4 times per year. Email co-leader Susan McLoughlin at McLoughlin@myositis.org. Register here.

TMA Montana is currently seeking leadership. Submit your interest here.

Residents of Montana attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Nebraska Myositis Support Group meets quarterly in-person on the second Saturday from 1-3 pm CT (January, April, July, October) at Zion Lutheran Church, 14205 Ida St, Omaha, NE 68142. Please see events calendar or email co-leader Laura Deardoff at Deardoff@myositis.org for more information.

TMA Arizona and Nevada Myositis Support Group meets every three months on the first Saturday (February, May, August & November) at 1:00 PM AZT. Email co-leader Linda Thomas at Thomas@myositis.org. Register here.

TMA New Hampshire is currently seeking leadership. Submit your interest here.

Residents of New Hampshire attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA New Jersey Myositis Support Group meets every three months on the first Monday at 6:30 PM ET. Email leader Colleen Layton at Layton@myositis.org. Register here.

Residents of New Mexico attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Upstate New York Myositis Support Group welcomes everyone living in the state and meets every month on the third Thursday at 7:00 PM ET. Email leader Dr. Peter Winkelstein at Winkelstein@myositis.org. Register here.

TMA partners with the Hospital for Special Surgery (HSS) in New York City. To participate in the HSS Myositis Support Group monthly meetings, email Suzan Fischbein, LCSW at FischbeinS@HSS.EDU.

TMA North & South Carolina Myositis Support Group meets meets on Zoom and in-person in Fort Mill, SC every three months on the second Saturday at 12:00 PM ET. Please email co-leader Steve Slice at Slice@myositis.org. Register here.

TMA Central North Carolina Myositis Support Group meets in-person 3-4 times per year. Please see events calendar or email Nudelman@myositis.org to see when the group meets next.

TMA VA, WV, NC Northeast Myositis Support Group meets on Zoom monthly on the fourth Thursday at 6:00 PM ET. Please email leader Kaniah Gunter at Gunter@myositis.org. Register here.

TMA North Dakota is currently seeking leadership. Submit your interest here.

Residents of North Dakota attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Ohio is currently seeking leadership. Submit your interest here.

Residents of Ohio attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Oklahoma is currently seeking leadership. Submit your interest here.

Residents of Oklahoma attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Northern California, Oregon & Washington IBM Support Group meets every month on the third Friday at 5:00 PM PT. This group is for residents of Northern California, Oregon and Washington who are diagnosed with Inclusion Body Myositis (IBM). Please email Malati Shinazy at Shinazy@myositis.org. Register here.

Residents of Oregon with a different type of myositis are welcome to attend above or attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here. You are also invited to attend any of the virtual meetings of California groups. See calendar.

TMA Pennsylvania is currently seeking leadership. Submit your interest here.

Residents of Pennsylvania attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Massachussetts and Rhode Island is currently seeking leadership. Submit your interest here.

Residents of Rhode Island attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA North & South Carolina Myositis Support Group meets meets on zoom and in-person in Fort Mill, SC every three months on the second Saturday at 12:00 PM ET. Email co-leader Steve Slice at Slice@myositis.org. Register here.

TMA South Dakota is currently seeking leadership. Submit your interest here.

Residents of South Dakota attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA Tennessee meets on the second Sunday of each month except for August and December at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at Hinton@myositis.org. Register here.

TMA Northeast Texas welcomes all Texas residents and meets monthly on the fourth Saturday through November at 10am CT. Email leader Melissa Rumpf at Rumpf@myositis.org. Register here.

TMA Idaho, Wyoming and Utah Myositis Support Group meets every three months on the third Saturday at 1:00 PM MT. Email leader Angie Mendenhall at Mendenhall@myositis.org. Register here.

TMA Vermont is currently seeking leadership. Submit your interest here.

Residents of Vermont attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA MD, DE, DC and Northern Virginia Myositis Support Group meets every two months on the third Saturday at 1:00 PM ET. Email co-leader Angela Hopp at Hopp@myositis.org. Register here.

TMA VA, WV, NC Northeast Myositis Support Group meets monthly on the fourth Thursday at 6:00 PM ET. Email leader Kaniah Gunter at Gunter@yositis.org. Register here.

TMA Northern California, Oregon & Washington IBM Support Group meets every month on the third Friday at 5:00 PM PT. This group is for residents of Northern California, Oregon and Washington who are diagnosed with Inclusion Body Myositis (IBM). Email co-leader Malati Shinazy at Shinazy@myositis.org. Register here.

Residents of Washington with a different type of myositis are still welcome to attend above or attend TMA’s Worldwide Myositis Support by Diagnosis Group which meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Register here.

TMA VA, WV, NC Northeast Myositis Support Group meets monthly on the fourth Thursday at 6:00 PM ET. Email leader Kaniah Gunter at Gunter@myositis.org. Register here.

TMA Minnesota & Wisconsin Myositis Support Group meets every two months on the first Tuesday at 6:00 PM CT. Email co-leader Lindsay Guentzel at Guentzel@myositis.org. Register here.

TMA Idaho, Wyoming and Utah Myositis Support Group meets every three months on the third Saturday at 1:00 PM MT. Email leader Angie Mendenhall at Mendenhall@myositis.org. Register here.

TMA Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formerly known as TMA Nationwide, this group has hosted international members since its inception in 2022. The meeting is held in English, but zoom translation is available. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own room. TMA Worldwide meets on the first Saturday of each month from 1:00 pm – 2:30 pm ET | 12:00 PM – 1:30 PM CT | 11:00 AM – 12:30 PM MT | 10 AM – 11:30 AM PT. Email co-leader Dave Volk at Volk@myositis.org. Register here.

TMA Affinity Groups


El tercer jueves de cada dos meses a las. For Spanish speakers – Meets every two months on the third Thursday of the month at 5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT. Email co-leader Veronica Fatura at Fatura@myositis.org. Register here.

For those who love someone with myositis – meets in their own breakout room with TMA’s Worldwide Support Group on first Saturday of the month at 1 PM ET | 12 PM CT | 11 AM MT | 10 AM PT. Register here.

For those who do not have a live-in care partner – Meets first Wednesday of each month at 8pm ET | 7 PM CT | 6 PM MT | 5 PM PT. Email leader Rhonda Rogers at Rogers@myositis.org. Register here.

Meets monthly on the third Tuesday at 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT. Email leader Eric Rocheleau at Rocheleau@myositis.org. Register here.

Meets every three months (January, April, July, October) on the first Wednesday at 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT. Email leader Ricky Marks at Marks@myositis.org. Register here.

Meets monthly on the second Saturday at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Register here.

For members of the LGBTQ+ community – Meets fourth Sunday at 5 PM ET | 4 PM CT | 3 PM MT | 2 PM PT. Email leader Barbara Shaw at Shaw@myositis.org. Register here.

Meets on the first Thursday of most months at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Email co-leader Holly Jones at Jones@myositis.org. Register here.

Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Email WomenWithIBM@myositis.org. Register here.