2022 International Annual Patient Conference – Agenda

TMA Patient Conference and COVID Recommendations

**Tentative Agenda, listed in Eastern Time**

Thursday, September 8

• Inclusion Body Myositis (IBM) – Jim Mathews, Moderator
• Dermatomyositis (DM) – Kaniah Gunter, Moderator
• Polymyositis/Necrotizing Myopathy (PM/NM) – Marianne Moyer, Moderator
• Care Partners – Rachel Bromley, Moderator

• Fundraising Clinic – Shevelle Montgomery, The Myositis Association
• Myositis 101 – Tahseen Mozaffar, MD
• Research Landscape in Myositis – Marie Holmqvist, MD, PhD
• Physical Therapy Considerations – Lindsay Alfano, PT, DPT, PCS
• Finding Inspiration – Elisa Glass, TMA Ambassador
• Management of Overlap Myositis – Julie Paik, MD, MHS

Friday, September 9

• Mediation – LaDonna Johnson, TMA Community Member
• Hand Exercises (IBM) – Malin Regardt, PhD, OT
• Aquatherapy – What To Expect – Emma Felter, The Myositis Association
• Skin Care – Omni McCluney, PA-C, MMsC, MPH

• Surviving Grief’s Stage Two (Anger) – Summer Katz, LMHC
• Clinical Overview of Dermatomyositis – Laurel Cherwin, RN, BSN
• Making Better Choices (Health, Wellness & Nutrition) – Kaniah Gunter
• Hints and Hacks (Show & Tell) – Rachel Bromley, The Myositis Association
• All About Anti Synthetase Syndrome – Iazsmin Bauer Ventura, MD, MSc
• Patient Advocacy – Michelle Vogel, CSI Pharmacy
• Patient Journey: From Diagnosis to Clinical Management – Merrilee Needham, MBBS, PhD, FRACP

• Myositis Support & Understanding: From The Heart –
  Lynn Wilson, VP, Director of Patient Centered Research
  Manuel Lubinus, Chief Science Officer
  Jessica Taylor, Director of Operations
  Benita Moyers, Board Member, MDA-5 Project Advisor
• Myositis and Swallowing – Genevieve Cintron, CCC-SLP
• Understanding Intravenous Immunoglobulin Therapy – Roxanne Marlar, BSN, RN, IgCN
• Care Partners and Compassion Fatigue – Natasha D’Arcangelo, LMHC, NCC, CCTP, CCFP
• Update on DM/PM Clinical Trials in Myositis – Rohit Aggarwal, MD
• Accessible Travel Resources – Carolina Hellman, The Myositis Association

• Myositis and COVID-19 – A Look at the Future – Rohit Aggarwal, MD
• Interstitial Lung Disease – Robert Hallowell, MD
• Exercise is Medicine in IIM – Lesley Ann Saketkoo, MD, MPH
• Enrolling in a Clinical Study – Adam Schniffenbauer, MD
• Cancer and Myositis – David Fiorentino, MD, PhD
• Skin and Dermatomyositis – Victoria Werth, MD
• In Sickness and In Health – Christina Martinez, LMHC, CCPT
• Aqua Therapy – Denise Mayhiew, Physical Therapist

Saturday, September 10

• Medication and Treatment in Myositis – Iazsmin Bauer Ventura, MD, MSc
• Aqua Therapy – Denise Mayhiew, Physical Therapist

• Inclusion Body Myositis – Tahseen Mozaffar, MD; Thomas Lloyd, MD, PhD and Conrad “Chris” Weihl, MD, PhD
• Interstitial Lung Disease – Robert Hallowell, MD
• Dermatomyositis – Julie Paik, MD, MHS; Victoria Werth, MD; David Fiorentino, MD, PhD and Tae Hwan Chang, MD
• Polymyositis/Necrotizing Myopathy – Adam Schiffenbauer, MD; Malin Regardt, PhD, OT; Lesley Ann Saketkoo, MD, MPH and Olivier Benveniste, MD, PhD
• Research – Marie Holmqvist, MD, PhD; Janine Lamb, PhD and Lindsay Alfano, PT, DPT, PCS

• Research and Clinical Study Design – Conrad “Chris” Weihl, MD, PhD
• Understanding Genetic Risk Factors – Janine Lamb, PhD
• Sing For Health! – Lesley Ann Saketkoo, MD, MPH
• Energy Preservation Strategies – Malin Regardt, PhD, OT
• Clinical Manifestations and Diagnosis of IBM – Thomas Lloyd, MD, PhD
• Inflammatory Myopathies and Innovative Therapies – Olivier Benveniste, MD, PhD

Sunday, September 11

• Meditation – LaDonna Johnson
• Finding Strength Through Faith – Shevelle Montgomery, The Myositis Association
• Hand Exercise (All Myositis) – Malin Regardt, PhD, OT
• Blood Flow Restriction – Bret Burton, PT, DPT, SCS, ATC, CSCS and Joel Yoder

• Environmental Triggers and Myositis – Adam Schiffenbauer, MD
• Reasonable Accommodations While Working – LaDonna Johnson
• Becoming a TMA Myositis Maven – Chrissy M. Thornton, The Myositis Association
• Living Wills and Trusts – Marcus Heinrich, CFP
• Autoantibodies and Prediction of Myositis Disease Course – Julie Paik, MD, MHS