Thanks to COVID-19, TMA quickly changed the 2020 Annual Patient Conference, originally scheduled for the Seattle area, to a completely virtual event. But thanks to all of you, the conference was the biggest in TMA’s history, reaching more than 600 people with myositis, their families and care partners.

From the inspiring greeting from rock legend Peter Frampton, himself an IBM patient, to the attendees who continued their informal chat room conversations well after the live conference ended, we loved seeing your energy, curiosity and generosity towards each other. For our part, the Conference accomplished what we’d hoped, bringing you the most accurate information from the world’s foremost myositis authorities, many of them TMA Medical Advisors, while also providing informal and safe places for you to interact with each other.

Many of the 2020 Annual Patient Conference sessions are now available online, and others will be shortly, as they’re released at noon every Friday as part of the “MyoMatinee” series.

2020 Annual Patient Conference Sessions

For Everyone

Welcome by Peter Frampton

How to pace yourself: An exploration of spoon theory and how to manage your expectations while managing your chronic illness

Myositis 101

Women of Color and Myositis Panel

Cook along with Chef Greg

Remaining close to your partner

Advanced care planning: Home care support, medical directives, aging in place

Home Modification Tour

For those with Inclusion Body Myositis

IBM Update

How are IBM and PM different?

For those with Dermatomyositis

Hair and Skin Care – DM

Oxygen therapy for those with lung disease

For those with Polymyositis

Oxygen therapy for those with lung disease

How are PM and IBM different?