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1 event,
Virtual Event
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Virtual Event
Join us for the NIH NOURISH Autoimmunity Challenge Winners Presentation Webinar on March 30th from 4:00 PM – 5:30 PM EST. During this special webinar event, we will celebrate and hear from the winners of the NOURISH Autoimmunity Challenge and hear short presentations on their innovative concepts. This is an excellent opportunity to learn the... |
1 event,
Featured
Virtual Event
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Featured
Virtual Event
TMA and Sam are joining forces for Autoimmune Awareness Month — and we're closing it out with a conversation you won't want to miss! Together, we're bringing the myositis and autoimmune communities into an open, honest dialogue about one of the most common — and complex — parts of living with myositis: long-term steroid use.... |
2 events,
Register Here Thanks to the initiative of TMA’s Women of Color Affinity Group and group founders Sherrod Bundage and Mustafa Shameem in getting this off the ground, this new group now meets quarterly on the first Wednesday as a way for men of color who are living with myositis to connect, share their stories, and... 
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
1 event,
Join us, TMA's WomenWithIBM Affinity Group, for a timely conversation on Abcuro’s newly-released topline results from the MUSCLE study of ulviprubart (ABC008) for Inclusion Body Myositis. OPEN TO ALL. Dr. Namita Goyal, Principal Investigator, will explain what the findings show and what’s ahead after the data is presented at the 6th Global Conference on Myositis... |
2 events,
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own... 
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
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1 event,Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ |
1 event,
Register Here Join the TMA Minnesota Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group provides a valuable opportunity... |
1 event,This group is for those with dermatomyositis, polymyositis, immune-mediated necrotizing myopathy, (any non-IBM diagnosis). It meets every 3 months on the second Wednesday at 1:30pm ET. Everyone from Michigan and close areas without a support group are welcome to attend, however, there is also a TMA Michigan IBM group you can join as well if... |
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1 event,
Open to all regardless how long ago you joined TMA! Living with myositis can be challenging, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know, understand, and share your new normal. Connect with people like... |
3 events,
You don't have to navigate myositis alone. Register Here Whether you're living with IBM, DM, PM, IMNM, Overlap Myositis, or supporting someone who is — the TMA Southern California Quarterly Group is your community. Join us every January, April, July, and October from 10:00 AM – 12:00 PM Pacific for a space where your experiences... 
This month's meeting will feature two Emmy Award-winning investigative journalists who have developed a thorough understanding of the challenges veterans face with the Veterans Benefits Administration and the ongoing effort to achieve recognition of IBM by the VBA. Jennifer Titus, investigative reporter for 10 Tampa Bay News in Florida, and Rebecca Lindstrom, Chief Investigative Reporter... 
TMA Nebraska Myositis Support Group meets quarterly in-person and virtually on the second Saturday from 1-3 pm CT (January, April, July, October) at Zion Lutheran Church, 14205 Ida St, Omaha, NE 68142. The church is reconstructing the main way into Zion and for this month, if there is construction we need to enter for our... |
1 event,TMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at [email protected]. Register here. |
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4 events,
For many living with Inclusion Body Myositis, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. Join us for a special two-part symposium this April and May, bringing together leading experts from Johns Hopkins to shed light on the speech and swallowing issues... 
During the April 14th meeting, Dr. Michael Garshick will be presenting on Myositis and the Heart. The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date... 
Register Here Join the TMA Minnesota & Wisconsin Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group... |
1 event,
Virtual Event
TMA has a wonderful opportunity to be part of the Giving Challenge, a special day of giving hosted by the Community Foundation of Sarasota County. This one-day event starting April 15 will double your generosity to TMA! Donations made online during a 24-hour period will be matched by The Patterson Foundation (up to $100 per... |
5 events,
Virtual Event
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Virtual Event
Register Here Join us for an empowering Zoom workshop where you'll learn practical self-hypnosis techniques specifically designed to support symptom relief and improve quality of life while living with myositis. You'll discover how your thoughts influence your physical body, how your subconscious mind is programmed, and how hypnosis can create new positive patterns that support... The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing... |
1 event,
Register here! Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group... |
2 events,The TMA MD, DE, DC, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland, Delaware, District of Columbia, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn... This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being... |
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Virtual Event
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2 events,
Virtual Event
Shop for makeup, skin care, fragrance, and more — while supporting TMA's important mission during Myositis Awareness Month! Support TMA The Avon Fundraising program helps charities like TMA connect with an Avon Ambassador to raise money for a worthy cause. Kathy Eichenbrenner, an Avon Ambassador in Charlotte, NC, is promoting this Avon fundraiser for... 
Virtual Event
Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! Order deadline is May 8, 2026. Eight designs are available with multiple styles, colors, and sizes. Your order will ship directly to you at the end of May from Custom Ink. We'd love to be tagged on social media... |
3 events,This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can... |
3 events,
Virtual Event
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Virtual Event
Join us for a special edition of The Myositis Association’s (TMA) Meet & Greet Leadership Series. Hosted by TMA Executive Director Paula Eichenbrenner and featuring TMA Board Chair Rich DeAugustinis, this engaging event is designed to bring our community together in a spirit of connection. Don’t miss this opportunity to connect with TMA leadership and... |
3 events,
👉 Register here TMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET, except December. Peer-led support groups matter at every stage of the journey. Even if you’re currently thriving, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA, we pride ourselves on... |
3 events,TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
3 events,The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,... |
5 events,
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources and education, sharing strategies for advocacy, and building... 
Virtual Event
Honey Dee - May is "Myositis Awareness" Month and I am here to help get the word out for all of those affected by this rare disease. Watch for merchandise available in the CartoonGems online store to show your support for those affected. During the month of May ALL proceeds from "Myositis Awareness" merchandise will... 
Featured
Hybrid Event
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Featured
Hybrid Event
Chip in for a great cause during Myositis Awareness Month at our TMA Open! Register Now! Support myositis research and patient well-being on Friday, May 1 at 9:00 AM (check-in 8:00 AM) at Blue Ridge Shadows Golf Course in Front Royal, VA. Format: Captain’s Choice Price: Teams $500 | Individual $150 | Virtual golfers welcome!... |
8 events,This group welcomes all Florida residents (and snowbirds) with myositis and their care partners to attend. This group meets four times a year in hybrid format (in-person and on zoom) every three months on the first Saturday from 11 AM-3 PM ET. Register Here TMA support groups are a place to connect, be understood, and...
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
