This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere...
35 events found.
Events
Calendar of Events
|
Sunday
|
Monday
|
Tuesday
|
Wednesday
|
Thursday
|
Friday
|
Saturday
|
|---|---|---|---|---|---|---|
|
0 events,
|
2 events,Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ |
0 events,
|
1 event,
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
0 events,
|
1 event,
Virtual Event
-
Virtual Event
Register Here Join The Myositis Association and the University of Kansas Medical Center for a free virtual regional conference designed for individuals living with myositis—including inclusion body myositis, immune-mediated necrotizing myopathy, dermatomyositis, polymyositis, anti-synthetase syndrome, and overlap syndromes. Patients, care partners, family members, and friends are all welcome to attend. Don’t miss this opportunity to... |
1 event,TMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at [email protected]. Register here. |
0 events,
|
3 events,
Virtual Event
-
Virtual Event
Join us for a Myositis Research Insights webinar featuring Dr. Christina Charles-Schoeman, a leading rheumatologist and researcher whose work is advancing our understanding of inflammatory muscle disease. Dr. Charles-Schoeman will highlight current research in myositis, including immune mechanisms that drive disease activity and how these insights are shaping more targeted, effective approaches to treatment. This... The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan... This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members... |
0 events,
|
1 event,
Virtual Event
-
Virtual Event
Register Here Living with myositis can bring daily challenges that affect both body and mind. This session offers a gentle and supportive space to learn about the brain and body connection and how it influences stress, energy, and well-being and practical ways to support yourself and others. Through accessible nervous system education, you’ll be invited to... |
0 events,
|
3 events,Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating... This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being... 
The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months (March, June, September and December) on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others,... |
|
0 events,
|
0 events,
|
0 events,
|
0 events,
|
3 events,
Virtual Event
-
Virtual Event
Register Here TMA's Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from a myositis expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical... The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing... 
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort... |
1 event,
Register here! Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group... |
1 event,The TMA ID, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in Idaho, Wyoming and Utah. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether... |
1 event,TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
1 event,
The 6th Global Conference on Myositis is the premier international forum dedicated to clinical care and research in myositis. Clinicians, researchers, healthcare professionals, patients, and industry partners from around the world are invited to be part of a global community shaping the future of myositis care and research! GCOM 2026 takes place in Lisbon, Portugal... |
2 events,The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,... |
2 events,
Virtual Event
-
Virtual Event
The TMA Kansas & Western Missouri Myositis Support Group is a welcoming space for individuals living with myositis. Meeting 3 times per year, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. TMA expresses its appreciation of the strong support given this group by KUMC (University of... |
3 events,
Featured
Virtual Event
-
Featured
Virtual Event
Learn more about TMA’s Proclamation50 Initiative, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding, diagnosing, and supporting those affected by these rare diseases. On March 26 at 6 pm ET, Jamie Batiste,... This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can... |
0 events,
|
1 event,
👉 Register here TMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET, except December. Peer-led support groups matter at every stage of the journey. Even if you’re currently thriving, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA, we pride ourselves on... |
|
0 events,
|
1 event,
Virtual Event
-
Virtual Event
Join us for the NIH NOURISH Autoimmunity Challenge Winners Presentation Webinar on March 30th from 4:00 PM – 5:30 PM EST. During this special webinar event, we will celebrate and hear from the winners of the NOURISH Autoimmunity Challenge and hear short presentations on their innovative concepts. This is an excellent opportunity to learn the... |
1 event,
Featured
Virtual Event
-
Featured
Virtual Event
TMA and Sam are joining forces for Autoimmune Awareness Month — and we're closing it out with a conversation you won't want to miss! Together, we're bringing the myositis and autoimmune communities into an open, honest dialogue about one of the most common — and complex — parts of living with myositis: long-term steroid use.... |
2 events,
Register Here Thanks to the initiative of TMA’s Women of Color Affinity Group and group founders Sherrod Bundage and Mustafa Shameem in getting this off the ground, this new group now meets quarterly on the first Wednesday as a way for men of color who are living with myositis to connect, share their stories, and...
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
1 event,
Join us, TMA's WomenWithIBM Affinity Group, for a timely conversation on Abcuro’s newly-released topline results from the MUSCLE study of ulviprubart (ABC008) for Inclusion Body Myositis. OPEN TO ALL. Dr. Namita Goyal, Principal Investigator, will explain what the findings show and what’s ahead after the data is presented at the 6th Global Conference on Myositis... |
2 events,
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own... 
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |