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3 events,
Virtual Event
Shop for makeup, skin care, fragrance, and more — while supporting TMA's important mission during Myositis Awareness Month! Support TMA The Avon Fundraising program helps charities like TMA connect with an Avon Ambassador to raise money for a worthy cause. Kathy Eichenbrenner, an Avon Ambassador in Charlotte, NC, is promoting this Avon fundraiser for... 
Virtual Event
Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! Order deadline is May 8, 2026. Eight designs are available with multiple styles, colors, and sizes. Your order will ship directly to you at the end of May from Custom Ink. We'd love to be tagged on social media... TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
3 events,The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,... |
5 events,
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources and education, sharing strategies for advocacy, and building... 
Virtual Event
Honey Dee - May is "Myositis Awareness" Month and I am here to help get the word out for all of those affected by this rare disease. Watch for merchandise available in the CartoonGems online store to show your support for those affected. During the month of May ALL proceeds from "Myositis Awareness" merchandise will... 
Featured
Hybrid Event
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Featured
Hybrid Event
Chip in for a great cause during Myositis Awareness Month at our TMA Open! Register Now! Support myositis research and patient well-being on Friday, May 1 at 9:00 AM (check-in 8:00 AM) at Blue Ridge Shadows Golf Course in Front Royal, VA. Format: Captain’s Choice Price: Teams $500 | Individual $150 | Virtual golfers welcome!... |
8 events,This group welcomes all Florida residents (and snowbirds) with myositis and their care partners to attend. This group meets four times a year in hybrid format (in-person and on zoom) every three months on the first Saturday from 11 AM-3 PM ET. Register Here TMA support groups are a place to connect, be understood, and... 
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own... 
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
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5 events,TMA Tennessee meets on the second Sunday of each month at 3:00 PM CT | 4:00 PM ET. Email leader Sharon Hinton at [email protected]. Register here. |
7 events,
Virtual Event
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Virtual Event
What’s next in myositis treatment—and what are the latest clinical trials revealing? To kick off Myositis Awareness Month, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference, held every two years,... This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere... Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ |
6 events,
Virtual Event
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Virtual Event
In recognition of Myositis Awareness Month and IMNM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH), who will share expert insights on...
Virtual Event
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Virtual Event
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences... 
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
4 events,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
4 events,
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In celebration of Myositis Awareness Month, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an "Ask the Expert" session along with an informal luncheon and open networking in TMA's office. Don't miss your chance to view TMA history, mingle with other families affected by... |
5 events,
Hybrid Event
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Hybrid Event
Join us in supporting a true legend of the disc (Frisbee) golf world — Jumpin’ Joe Feidt — as he leads a fundraiser for The Myositis Association (TMA) on May 9 in Inver Grove Heights, Minnesota. Whether you register to play the Innova-sponsored PDGA-sanctioned tournament or support virtually through Joe’s fundraising campaign, your contribution makes... 
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating... This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being... |
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4 events,The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan... This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members... |
4 events,
Virtual Event
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Virtual Event
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed, informal gathering is a space to connect with others who truly understand the DM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences that shaped...
Virtual Event
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Virtual Event
In recognition of Myositis Awareness Month and DM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins, who will share expert insights... |
3 events,
Register here! Join the TMA Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT, this group... |
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3 events,
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Please join us for the third annual C Potter Classic with kids and adults softball game, stadium food/pizza, tailgating, beers, and fun. All in honor of our lovely Carolyn. All proceeds to The Myositis Association. |
3 events,
For many living with Inclusion Body Myositis, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. Join us for the second part of this two-part symposium this May (Part 1 will be available on our YouTube Channel by first week in May), bringing... |
4 events,
Virtual Event
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Virtual Event
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis, MD, a leading myositis specialist, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging...
Virtual Event
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Virtual Event
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed, informal gathering is a space to connect with others who truly understand your myositis journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and... |
4 events,The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing... 
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort... |
3 events,
👉 Register here TMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET, except December. Peer-led support groups matter at every stage of the journey. Even if you’re currently thriving, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA, we pride ourselves on... |
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3 events,TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
4 events,
Virtual Event
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Virtual Event
Join us for a special community screening of Diagnosis Denied, a powerful investigative documentary series from 11Alive Investigates and NBC affiliates across the country, examining why U.S. veterans diagnosed with inclusion body myositis (IBM) are so often denied VA disability benefits. Through reporting from coast to coast, the series uncovers patterns in claim denials, gaps... The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,... |
5 events,
Virtual Event
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging research. Next, we will come together...
Virtual Event
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Virtual Event
As part of Myositis Awareness Month, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist, Dr. Jens Schmidt, who will provide expert insights into diagnosis, disease management, current treatment approaches, and emerging research. This webinar...
Virtual Event
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Virtual Event
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences... |
4 events,
Featured
Virtual Event
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Featured
Virtual Event
As we close out Myositis Awareness Month, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently, comfortably, and fully. We are thrilled to welcome Monique Chabot, PhD, OTD, OTR/L, FAOTA, SCEM, CLIPP, CAPS, Associate... This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can... |
3 events,
Hybrid Event
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Hybrid Event
Join Us at the Ballpark! ⚾ Grab your peanuts and rally cap — we're heading to a Minor League Baseball game! Join fellow myositis community members for a fun night out at Segra Park in Columbia, SC as the Columbia Fireflies take on the Charleston RiverDogs on Thursday, May 29 at 7:00 PM ET. This... |
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1 event,Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ |
2 events,
Register Here Join the TMA Minnesota Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group provides a valuable opportunity...
Virtual Event
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Virtual Event
What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis? Natural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis... |
1 event,
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
0 events,
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2 events,
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |