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Thanks to our partners at LiftSeat for sharing this informative article. For most people, using a toilet isn’t something you think twice about. However, when living with a progressive neuromuscular disease like myositis, performing this basic function requires planning. Using a standard toilet when you have lower body weakness can be challenging and even dangerous,…
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by Joe Feidt I was having trouble swallowing. That’s how it started. It’s now been 11 years since I heard my neurologist say, “Joe, I’ve got good news and bad news. The good news is you don’t have ALS; the bad news is you have IBM.” I said, “I have WHAT?!” My reality today is…
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Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
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COLUMBIA, MD, UNITED STATES, May 1, 2025 /EINPresswire.com/ — May is Myositis Awareness Month, a time dedicated to raising awareness about a rare autoimmune disease that affects muscles and skin. The Myositis Association (TMA) leads this initiative, aiming to educate the public, support those living with myositis, and advocate for better treatments and a cure….
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Results of a patient-led research project Editor’s note: This is part two of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
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