Find Your People

For most of her life, Malarie Hensley defined herself by motion. A dedicated runner, she completed two marathons and eight half‑marathons, spending countless weekends on long runs with friends. When…

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The Biopsy Question

By Linda Thomas If you’ve been circling the world of inclusion body myositis for any length of time, you’ve probably heard the word biopsy spoken with a mix of reverence,…

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Turning Grief into Advocacy

Jamie Batiste never expected that the path to advocacy would begin in a childhood bedroom, where she and her brother Aaron spent hours pretending to host their own radio show….

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