20th Anniversary Celebration
October 17-20, 2013
Louisville, KY
Thursday, October 17
Successful Support Groups – Marianne Moyer & Charlia Sanchez
TMA: Twenty Years Later: Progress in understanding myositis – Dr. Fred Miller, National Institutes of Environmental Health Sciences
Nutrition for inflammatory disease – Dr. Renee Lantner, TMA Board of Directors
Myositis: clues from the environment – Dr. Fred Miller, National Institutes of Environmental Health Sciences
IVIG: Questions and answers about home infusion – Susan Artabasy, regional IV mamager, Walgreens, and Tracey Lynn Englert, Kentucky IV manager, Walgreens
Friday, October 18
Myositis treatment: How and why? – TMA Medical Advisory Board Member Dr. Chet Oddis, University of Pittsburgh
Driving assessment and rehabilitation – Suzanne Farnan-Maddux, a driving rehab specialist at Frazier Rehab Institute
A new age for mobility – Dr. Mary Ellen Buning, professor, University of Louisville
Myositis 101 – TMA Medical Advisory Board Member Dr. Chet Oddis, University of Pittsburgh
New approaches to muscle disease – Dr. Paul Murphy, Sue Maillard & Dr. Renee Lantner (moderator)
Dr. M. Paul Murphy, University of Kentucky, discusses research on Over-the-counter anti-inflammatories, diet and exercise in IBM.
TMA Medical Advisory Board Member Sue Maillard, Great Ormond Street Hospital, reports on the effects of exercise on children with myositis, and how the results might be applied to adults.
Veterans issues – Stanley Kerr Chief, of Prosthetics for the Department of Veterans Affairs, discusses mobility, home adaptation and other aids for veterans with myositis.
The role of genetics in IBM, purpose and continuation of the St. Louis Study – Dr. Conrad Weihl, Washington University School of Medicine
Computer adaptations: apps for accessibility – Mary Ellen Buning, Ph.D, Frazier Rehab
Chronic disease in a fast-moving world – Dr. Amy Wood, author and practicing psychologist
PM/DM Drugs – Dr. Martin Brown of the University of Louisville Neuromuscular Center
Saturday, October 19
Syndromes, classifications by antibodies: what it means – Dr. Mark Gourley of the National Institutes of Health
TMA’s Medical Advisory Board – current research
Cancer, heart disease, dysphagia – screenings and risks for DM and PM patients – TMA Medical Advisor Dr. Dana Ascherman, University of Miami
Fall prevention and recovery – Kathy Paper
Screening for and managing lung disease – TMA Medical Advisory Board Member Dr. Chet Oddis, University of Pittsburgh
BYM338 – Breakthrough therapy for IBM – Dr. Steven Greenberg
Working with your health care team – Dr. Andrew Mammen, co-director, Johns Hopkins Myositis Center
Evolving uses of IVIG – Dr. Rossitza I. Chichkova, University of South Florida
Finding strength through faith – TMA Board Chairman Augie DeAugustinis
Finding support and information you can trust – Bill Simeral, PM Patient