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Results of a patient-led research project Editor’s note: This is part two of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
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An IBM patient-led research project Editor’s note: This is part one of a three-part series of articles from Dr. Kevin Austin, an Adjunct Professor in the Health Futures Institute’s Personalised Medicine Centre in Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…
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TMA is excited to announce that The Journal of Rheumatology recently published a pivotal study titled “The Dermatomyositis Disease Symptom Questionnaire (DM-DSQ): A Measure to Assess the Patient Experience of Dermatomyositis Symptoms.” This groundbreaking research, led by an international team of myositis experts, including TMA medical advisors Dr. Lisa Christopher-Stine, Dr. Namita Goyal, and Dr….
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Marianne passed away on May 2, 2024, from complications of SRP necrotizing myopathy and interstitial lung disease. On the eve of the one-year anniversary of her death, we offer this tribute in recognition of her dedication to TMA and those who lived with these rare diseases. It’s not often that one meets a person who…
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When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA, in partnership with Nori’s Fight and Myositis International Health and Research Collaborative Alliance (MIHRA), brought the myositis community together virtually to share the latest in myositis research and hear those who live with these diseases tell the stories…
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