The myositis community mourns the loss of James “Jim” Mathews of Grand Haven, Michigan, who passed away on February 5, 2026, surrounded by his loving wife, Cathy, and six children….
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TMA Partners with SAM (Steroids and Me)
If you have a form of myositis and take steroids as part of your treatment, you already know how challenging this can be. Corticosteroids like prednisone are often the first…
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Find Your People
For most of her life, Malarie Hensley defined herself by motion. A dedicated runner, she completed two marathons and eight half‑marathons, spending countless weekends on long runs with friends. When…
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The Biopsy Question
By Linda Thomas If you’ve been circling the world of inclusion body myositis for any length of time, you’ve probably heard the word biopsy spoken with a mix of reverence,…
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Turning Grief into Advocacy
Jamie Batiste never expected that the path to advocacy would begin in a childhood bedroom, where she and her brother Aaron spent hours pretending to host their own radio show….
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