Pushing for an Answer

By Darlene Butler Throughout my nursing career, I worked with many physicians and providers. Most were kind, helpful, and patient centered. Occasionally, I would encounter a provider that didn’t give…

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Protect Yourself This Flu Season

As flu season approaches and COVID-19 continues to circulate, vaccination remains one of the most effective ways for people with myositis to protect themselves from serious illness. While concerns about…

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MyoCon: We are not alone

By Linda Thomas I just got back from MyoCon25, and honestly? I’m still recovering—in a good way. For those of us living with a rare disease like inclusion body myositis…

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