NameEligibilityMore information
Adult and Juvenile MyositisAdults and children with DM, PM, sIBM, and related conditionsMore details; NIH – Adam Schiffenbauer
301-451-6270
NCT00017914
Environmental risk factors for antisynthetase syndromeAdults and children with myositis, with or without ASyS autoantibodiesMore details;
NIH – Adam Schiffenbauer
301-451-6270
NCT00017914
Evaluation of clinical responsiveness of DM using cutaneous DM diseases area and severity index (CDASI)Adults with DM and skin diseaseMore details;
Victoria Werth
215-615-2940
NCT02945345
IBM disease registry at YaleAdults with IBMMore details;
Kurt Petschke
203-785-6453
IBM Natural History Study (INSPIRE-IBM)Adults > 40 y/o with IBMMore details;
NIH – Tahseen Mozaffar
714-456-2525
NCT05046821
Natural history of autoinflammation diseases and JDMChildren and adults > 2 y/o with autoimmune disease, including JDMMore details;
NIH – Hanna Kim
301-594-6196
NCT00059748
Rheumatology patient registry and biorepositoryAdults with rheumatic autoimmune diseaseMore details;
Nicolas Page
203-737-5571
NCT04402086
Study and treatment of inflammatory muscle diseasesAdults and children > 16 y/o with IMM (suspected or confirmed)More details;
NIH – Andrew Mammen
301-480-3191
NCT00001265