2017 Annual Patient Conference - The Myositis Association

San Diego, CA

TMA’s 2017 Annual Patient Conference offered participants the chance to learn about their disease from the world’s leading myositis researchers and clinicians as well as each other. Here we provide materials from as many of those presentations as possible, so those who were unable to travel to San Diego can also benefit from this valuable information.

2017 Annual Patient Conference session by topic

Exercise

Home exercise program for IBM – Dr. Helene Alexanderson and Sue Maillard
Presentation | Video

Home exercise program for DM, PM, and NM – Helene Alexanderson and Sue Maillard
Presentation

Hand exercise program for IBM – from Malin Regardt
Presentation

Classroom introduction to aquatic therapy – Sheralee Beebe
Presentation

Aquatic therapy in the pool for those who have trouble walking – Sheralee Beebe
Video

Getting started and sticking with an exercise plan – Dr. Helene Alexanderson & Sue Maillard
Presentation | Video

Learn about myositis

Myositis 101 – Dr. Namita Goyal
Presentation | Video

Antisynthetase syndrome – Dr. Floranne Ernste
Presentation | Video

Promising research in IBM – Dr. Olivier Benveniste
Video

Discovery, understanding, and progress in myositis research – Dr. Todd Levine
Presentation

IBM: Is it an inflammatory disease or am I getting old? – Dr. Andrew Mammen
Presentation | Video

Understanding necrotizing myopathy – Dr. Andrew Mammen
Video

Myositis and…

Myositis and the risk of infection – Dr. Mazen Dimachkie
Presentation | Video

Skin issues in autoimmune disease – Matthew Lewis
Presentation

Do I have the wrong diagnosis? – Dr. Ann Reed
Presentation

Myositis and heart disease – Dr. Christina Charles-Schoeman
Video

Myositis and malignancy – Dr. Rohit Aggarwal
Video

Q & A sessions

Reports from TMA’s Medical Advisory Board
Video

Q&A – IBM – Dr. Thomas Lloyd and Dr. Conrad Weihl
Video

Q&A – antisynthetase – Dr. Floranne Ernste
Video

Q & A – PM – Dr. Steven Ytterberg
Video

Q&A – DM – Dr. Rohit Aggarwal & Dr. Matthew Lewis
Video

Myositis treatment

What you should know about home IVIg – James Sheets, Michael Rigas & John May
Video

Myositis medications and treatments – Dr. Wael Jarjour
Presentation | Video

Nutrition and supplements for inflammation – Kelsey Peterson
Presentation | Video

Caregiving and support

Finding and paying for the care you need to age in place – Abbie Cornett
Video

How to advocate for yourself in the medical system – Michelle Greer
Presentation

Social security disability and the myositis patient – Abbie Cornett
Presentation | Video

Building resilience: Strategies for managing stress – Rosemary Istre
Presentation

Managing the medical team – Marianne Moyer
Presentation

Accessible home design – Carla Stevenson
Presentation | Video

Advance directives, estate planning, and legal issues – Rosemary Leonard
Presentation | Video