New Orleans, LA
September 1-4, 2016
Folks learned a lot at TMA’s Annual Patient Conference. If you couldn’t make it to New Orleans in September, here are the videos, power point slides, and other materials from many of the presentations. More materials will be posted as they become available, so check back often.
Understanding myositis
Myositis 101, a primer for beginners – Dr. Steve Ytterberg
Myositis 101, a primer for beginners – Dr. Thomas Lloyd
Discovery, understanding and progress in myositis – Dr. Steve Ytterberg
Overlap Syndrome – Dr. Chet Oddis
Hereditary IBM – Dr. Margherita Milone
The many faces of IBM – Dr. Marianne de Visser
Myositis and lung disease – Dr. Dana Ascherman
Antisynthetase syndrome – Dr. Lisa Christopher Stine Informal question and answers
IBM Q & A – Dr. Chris Weihl
Reports from TMA’s medical advisory board – TMA medical advisors
Understanding myositis medications – Dr. Namita Goyal
Understanding necrotizing myopathy – Dr. Andy Mammen
Promising Research in IBM – Dr. Thomas Lloyd
Exercise
What happens when you exercise – Dr. Helene Alexanderson and Sue Maillard
Prolonging independence – Dr. Helene Alexanderson and Sue Maillard
Home exercise program for PM and DM – Dr. Helene Alexanderson
Home exercise program for IBM – Dr. Helene Alexanderson
Support
Veterans find support – Bob Greene and Ray Lesoine
Finding and paying for respite care – Karyn Rizzo
Building resilience: Strategies that work to manage depression and stress – Rose Mary Istre
Nutrition for inflammatory disease – Renee Lantner
Creativity as a beacon of hope & Resources – Liz Kitchens
Share your favorite strategies and devices – moderated by Camille Lesoine
A full life: What to do when you can’t do what you use to do – Ray Lesoine
For caregivers
Finding and Paying for long term care – Karyn Rizzo
Home health care: interview potential helpers – Karyn Rizzo
Practical tips by and for caregivers – Sue Maillard, Nancy Harber