It’s vacation time! Time to work on that bucket list of places you’ve always wanted to see and things you’ve always wanted to do. We hope MyoCon 2025: TMA’s Global…
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Maximizing bathroom independence
Thanks to our partners at LiftSeat for sharing this informative article. For most people, using a toilet isn’t something you think twice about. However, when living with a progressive neuromuscular…
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Help for coping with IBM
Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized…
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My medical binder
By Dorothy Vetrano In January, Shawna Nielsen posted about her “Top 10 Tips for the Newly Diagnosed.” One of her tips was to create a medical binder. I’ve done this,…
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Unshakable optimism
By Mike Matthews At the end of 2021, Cambridge Dictionary announced their Word of the Year was “perseverance.” On top of all the profound collective challenges that everyone is currently…
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