Myositis research awards bring hope to those with rare diseases

Since 2002, The Myositis Association’s annual research funding program has awarded nearly $8.2 million in research support. We are pleased to announce our 2024 grant awards, funding disease-specific projects in myositis: Our first grant of $80,000 is awarded to Thomas Lloyd, MD, PhD, Chief of Neurology at Baylor College of Medicine, Houston, TX, for his…

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CAR T-cell therapy: A viable option for myositis treatment?

Chimeric antigen receptor T-cell (CAR T-cell) therapy is a process developed to treat certain forms of cancers, especially blood cancers like leukemia and lymphoma. Recently, however, researchers have started exploring its use for autoimmune diseases, including idiopathic inflammatory myositis (IIM). This application is still experimental and not yet available for myositis outside of research studies,…

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More on immune boosting supplements

Our article about immune boosting supplements raised many questions about the effects of herbal products for those who live with myositis. Such products have been heavily promoted in recent years as remedies for all manner of maladies, including viral and other infections such as colds, flu, and COVID 19. While little or no research has…

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Vamorolone approved by FDA

Recently, the FDA announced the approval of a new drug, vamorolone, as a treatment for Duchenne muscular dystrophy (DMD), a genetic muscle disease that usually affects young boys. Understandably, this news hasn’t made a big splash in myositis circles, but it should. Vamorolone, marketed under the name Agamree, is a corticosteroid drug with a twist….

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ProDERM study results of Octagam® 10% treatment in patients with dermatomyositis published in the New England Journal of Medicine

Octapharma announced today the results from the ProDERM study on the efficacy and safety of Octagam® 10% [Immune Globulin Intravenous (Human)], in adult dermatomyositis (DM) patients have been published in the New England Journal of Medicine (Aggarwal R et al. “Trial of Intravenous Immune Globulin in Dermatomyositis”) Click here for more details

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