Kevin and Ros Austin

Help for coping with IBM

Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…

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Coping with IBM

Results of a patient-led research project Editor’s note: This is part two of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre at Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…

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Discovering priorities

An IBM patient-led research project Editor’s note: This is part one of a three-part series of articles from Dr. Kevin Austin, an Adjunct Professor in the Health Futures Institute’s Personalised Medicine Centre in Murdoch University, Australia. He lives with IBM and turned his research skills toward a study to understand the priorities of those living…

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We Care for Rare Summit: Celebrating myositis science and patient stories on Rare Disease Day

When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA brought the myositis community together virtually for the We Care for Rare Summit. In partnership with Nori’s Fight and Myositis International Health and Research Collaborative Alliance (MIHRA, community members shared the latest in myositis research and heard the…

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Changing the landscape of antisynthetase syndrome and ILD forever

By Iazsmin Bauer Ventura, MD On November 1, 2024, Dr. Ventura offered the following words at The First Annual Meredith C. Thomas Trivia Fundraiser, a benefit for TMA’s Meredith C. Thomas Memorial Fellowship fund. This research fellowship is currently recruiting a physician scientist to study antisynthetase syndrome and myositis interstitial lung disease. I am a…

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