When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA brought the myositis community together virtually for the We Care for Rare Summit….
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Changing the landscape of antisynthetase syndrome and ILD forever
By Iazsmin Bauer Ventura, MD On November 1, 2024, Dr. Ventura offered the following words at The First Annual Meredith C. Thomas Trivia Fundraiser, a benefit for TMA’s Meredith C….
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TMA research fellow revives lost technology
The path of discovery is not often a straight line. Most times it winds around from one question to another. Sometimes the trail just stops until someone else with a…
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Patients make a difference in myositis research
Patients and patient organizations play a pivotal role in myositis research. Those who live with the disease are, in fact, the experts on myositis, and increasingly they are actively involved…
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Patient reported quality of life study results
No one needs to tell someone with myositis that the disease brings with it a great many physical, mental, and financial challenges. The debilitating symptoms significantly affect one’s quality of…
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