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By Jenna Radke In January of 2022, my life took an unexpected turn. Just one month after graduating from my undergraduate university and embarking on the journey to apply to medical school, I began developing symptoms of dermatomyositis. At the time, I had no idea how this rare and unpredictable disease would affect my life…
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By James “Sudz” Szudzik I am the first born of five children. I have two brothers and two sisters. I am a baby boomer, born in Grand Rapids, Michigan just after World War II. My father served in the US Army in Papua, New Guinea. My mother, who stayed at home and raised all of…
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In recognition of World Myositis Day (September 21), we are highlighting the stories of some of our overseas members. Your financial support enables TMA to help people in other countries who have few resources to help them navigate myositis. Will you consider making a gift to help TMA continue providing this essential support to people experiencing this rare…
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My name is Cynthia Ikediashi. I reside in Lagos, Nigeria. Early in 2009, while in my third year at the university, I started experiencing weakness in my arms, thighs, and legs accompanied by extreme tiredness, which happened to be my very first symptom. Before the middle of the year, I was able to get an…
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Robert Grun and his wife were expecting twins. Robert was in his mid-20s working as a compliance officer on mergers, acquisitions, and insider trading in a Wall Street firm in the Twin Towers. He worked all the time, but he was looking forward to starting a family. Three months after his boys were born, he…
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