By Jacqui Garcia After returning from Sweden in July 2023, I noticed something was off. My usual walk from the train station to my home became difficult. My muscles felt…
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Seeing the other side: On being a clinical trial participant
By Martha Arnold Before I retired, I worked in the pharmaceutical industry, helping drug development teams make their strongest case to the FDA for approval of their compounds across a…
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Partners in the fight
By Ed McGrath My wife Marilyn has dermatomyositis, diagnosed in 2008. Her dermatologist initially thought she had lupus, but two years later she finally saw a rheumatologist who knew exactly…
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Don’t go through this alone
At the age of 61, Bill Simeral was coaching downhill ski racing. He was in amazing shape, the guy who never got sick. His routine blood tests were abnormal, however,…
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I am a myositis and cancer warrior
By Kimberly Branche My myositis journey began in 2017 when my pulmonary doctor referred me to a pulmonary specialist at St. Joseph Hospital in Phoenix. I was having difficulty breathing…
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